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Group Description

This group was designed for parents and other family members of adolescents, teens, and adults who have a female family member with trisomy X or a related condition, as well as the individual with a diagnosis of trisomy X. Parents of younger children with a trisomy x diagnosis or a prenatal diagnosis are also welcome to join but another group, raregeneticdisorders@yahoogroups.com has a large community of parents with younger children and expectant mothers.

This site is intended to provide an open forum for sharing information, providing support, and resources for all areas of the adolescent through adult trisomy X female. This site is also intended to be a forum to share the accomplishments, successes as well as challenges of girls with trisomy X.

If you are interested in additional technical information, conferences, or groups that serve individuals with trisomy X, as well as boys with kleinfelters, please visit KS&A's website at www.genetic.org.

The Netherlands also has a parent group and a website of articles that have been translated into English. That site can be accessed at www.triple-x-syndroom.nl.

London England has an excellent triple x support group headed by a pioneer parent, Helen Clements. You can reach this group at helenclements@hotmail.com. For a small fee of $20 you can become a member of this group and receive an excellent newsletter.

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  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

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