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Group Description

This site is for those who have children with born with Tetralogy of Fallot. I have started it in the name of our son Andrew Nathan who, thankfully is alive and healthy today. Andrew was born May 6, 2002 to myself (Renee) and my husband Antonio. Andrew has three older siblings Anastasia ~Ana~(9), Antonio ~A.J~(7) and Atheena~bean~(4). We were told that Andrew had TOF the same day he was born. At first it was thought that his case was mild and that he would be able to wait for any surgery. Two weeks later I was rushing him to the ER with sats in the 30's! He recieved the BT shunt which held up for about 3 weeks. It turned out Andrew's TOF was extreme! Andrew's Cardiologist, Dr. Morelli decided that Andrew needed his complete repair immediatley. He underwent surgery for his comlpete repair at 6 weeks old at NY Childrens hospital. There, he was cared for by Dr. Mosca. Dr. Mosca performed the surgery and ulimately saved Andrew's life. He recovered very well, has not had any complications and is a very healthy, vibrant baby.
I had never heard of TOF. I could not pronounce it no less, understand it. When I got home from the hospital I immediately went on line find out what TOF was all about. I found alot of information on TOF but most was medical reports and/or studies which can be very helpful. Although, what I was looking for were others who knew what I was feeling. This is the reason for this site. Together, we as parents, can help one another understand this C.H.D and share OUR feelings of our babies little beating hearts.
~~~~~~~~I LOVE YOU ANDREW~~~~~~~

Group Information

  • 472
  • Heart Diseases
  • Nov 11, 2002
  • English

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