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Group Description

This is a private member-only website for people with Selective Sound Sensitivity. Sometimes the word misophonia has been used as well.

THIS IS A TREATMENT/HELP LIST OF PROVIDERS:
www.misophonia-provider.com

PLEASE NOTE: Advertising or promotion of product or clnically unproven method is prohibited. Those posts will be removed.

FIRST ANNUAL MISOPHONIA ASSOCIATION CONFERENCE: October 25-26, Portland OR
https://www.facebook.com/events/413712935413606/416208495164050/?comment_id=416213028496930┬Čif_t=event_mall_comment

Misophonia or Selective Sound Sensitivity can occur in people of all ages, and can have a sudden or gradual onset, most often 4S appears at a young age. Most often cited objectionable sounds include lip smacking, chewing, swallowing, breathing, teeth or silverware clinking, plate scraping, paper tearing, fingernail biting, computer mouse clicking, or low pitched hums of electrical circuits or machines. Some people with 4S find certain letter sounds objectionable, i.e., s or k or p.

Reactions can include rage, sadness, panic attack, indecision, loss of cognition, physical itching or crawling sensations, urge to flee, or fight.

Most often the person's hearing is excellent and it is very difficult to find knowledgeable medical providers or an appropriate support system.

The condition is mysterious and we suspect a genetic component.

The definitions of this condition and its related sensory sensitivity 'cousins' which can include visual and tactile triggers, is in discussion in various professional circles at this time. We choose to focus on support, education, raising awareness, and gathering information in order to hopefully spark interest.

Dr. Marsha Johnson, Audiologist, named this condition in 1997 and moderates this website. Dr, Pawel Jastreboff introduced the term misophonia, in 2002, and this is the most common term for this malady.

Group Information

  • 5263
  • Health Care
  • Oct 30, 2005
  • English

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