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Group Description

A support list for all affected in some way by Shwachman-Diamond Syndrome (SDS) or SDS-like disease. We wish to provide those affected by SDS or SDS-like disease a place to find information, encouragement and support. If you are going through diagnosis, if you have been diagnosed with SDS or SDS-like disease, you are welcome to join! If you have a disease similar to SDS, you are welcome to be here...neutropenia, pancreatic insufficiency, failure to thrive and celiac to name a few. We even have several families with Shwachman-Diamond Syndrome and Mitochondrial disease (Mito).

We think that you will find encouragement, strength and hope as you interact with those on the list. This is a list full of wonderful people and lots of information! Medical questions are welcome! Please check with your physician before changing existing treatment or trying any new treatment.

We all travel down the same SDS Highway 101 and this list is a help on that journey. Whether you or your child are facing possible diagnosis, transplant or just living with day to day SDS trials. We're here to support and encourage you no matter where you are along your journey. We have members from around the world who have been diagnosed with SDS or SDS-like disease, celiac, pancreatic insufficiency and many who are on a diagnostic journey to find out what disease they have. ALL are welcome to participate on our list.

This list is not affiliated with Shwachman-Diamond America. Any views expressed on a board member's personal blog, website or Facebook do not express the opinions of Shwachman-Diamond America or the SDA Board.

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

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