Loading ...
Sorry, an error occurred while loading the content.

I'm a Retinoblastoma

Expand Messages
  • mukluk_jack
    I think it s important to have a forum to communicate with others who have dealt with similar issues, such as eye cancer and eye loss. I am 40 years old, and
    Message 1 of 41 , Feb 16, 2001
    View Source
    • 0 Attachment
      I think it's important to have a forum to
      communicate with others who have dealt with similar issues,
      such as eye cancer and eye loss. I am 40 years old,
      and lost my eye at 22 mos. due to retinoblastoma.
      There are so many issues I'm finding as I get older
      that I would love to talk with someone about: <br>1)
      Experience you've had with your children, how often are they
      examined, etc.<br>2) New technologies available today.
      Should I have surgery on my eye socket to take advantage
      of some of the latest technology.<br>3) Keeping up
      with genetic research. A specialist told me last month
      that he thought they'd find the retinoblastoma gene
      within the next year or two.<br><br>Anyone who would
      like a "pen pal" of sorts? Let me know. <br><br>Also,
      I received a message today from someone who was
      looking at this site. Your message was received, and
      inadvertantly deleted. I am sorry, please e-mail me again as I
      would really like to respond.
    • babysittercats
      I wnated to share this story with u anyway. my mom found it for me and i think it is worth reading especially if u are a christian. from the people i have
      Message 41 of 41 , Sep 25, 2001
      View Source
      • 0 Attachment
        I wnated to share this story with u anyway. my
        mom found it for me and i think it is worth reading
        especially if u are a christian. from the people i have
        talked to that have had rb or their kid(s) had rb they
        have talked about how faith have helped get them
        through it all so here is the link but i think u need a
        password and username to access it so if u want to read it
        and u can't get into it then im me or email me
        lindsay_f@... and i will give you my's schools that u can
        use.<br>god bless to all<br>please come and
        post!<br>lindsay<br><br>ps sorry i think i forgot to paste the link on my
        first post so here it
        is<br><a href=http://proquest.umi.com/pqdweb?Did=000000065611827&Fmt=3&Deli=1&Mtd=1&Idx=8&Sid=1&RQT=309 target=new>http://proquest.umi.com/pqdweb?Did=000000065611827&Fmt=3&Deli=1&Mtd=1&Idx=8&Sid=
        1&RQT=309</a>
      Your message has been successfully submitted and would be delivered to recipients shortly.