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Group Description

This group is
dedicated to education of, and support to, people affected by Protein Losing
in children or adults with Congenital Heart Disease,
namely those with "Fontan anatomy".  We aim to increase survival and
quality of life by sharing what we've learned through speaking with our
doctors, and doing our own research.


By joining
together, we CAN find an answer to this mysterious


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*A Sister-Group of
the Hope for Children with HLHS Group*


Group Information

Group Settings

  • This is a restricted group.
  • Attachments are permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

Message History