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95

Lumizyme reactiions Yesterday, the second girl that received for the first time Lumizyme, also presented reactions, although less severe than my daughter.   She got nauseas and

Jorge Romero
Apr 11, 2012
#95
 

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94

Re: Yamila, March 12 This is awesome. What a beautiful personality. Mia is so shy, I cannot imagine her ever that outgoing, lol. To: jorgeromero51@... From:

Dawn Hanley
Apr 9, 2012
#94
 

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93

Yamila, March 12 Yamila is growing and showing improvements in her condition. Here in a recent concert in her school.  

Jorge Romero
Apr 8, 2012
#93
 

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92

New treatment for Pompe It's a good news for our families. http://www.sunherald.com/2012/02/27/3779124/angiochem-forms-collaboration.html#storylink=misearch  It's a good news for our

Jorge Romero
Feb 28, 2012
#92
 

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91

Hi Suchen Tsai: The reason that we move a lot it's because we have to deal with insurance issues; and mainly we ask for help to the Doctors that are interested

Jorge Romero
Feb 20, 2012
#91
 

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90

Pompe weekdays A normal Pompe weekdays http://youtu.be/qcQSn4PXEXQ Monday 23. Day of infusion. NEWS Myozyme is not longer produced after March 31. All children will receive

Jorge Romero
Jan 31, 2012
#90
 

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89

(no subject) Hi Jorge,   May I ask why you move a lot? for your job or for Yami?   Harry's mom ________________________________ From: Jeffrey Schubert

suchen tsai
Jan 17, 2012
#89
 

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88

Re: Yami Rom 2012 Thanks for sharing.  I hope that Yami does well.  I think she is walking very well.  Good luck with the surgery. ... From: Jorge Romero

Jeffrey Schubert
Jan 17, 2012
#88
 

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87

Yami Rom 2012 Last week, we saw Dr. John Delahay in Kiwanis Orthopedic Clinic who recommended surgery to correct her foot position. The doctor thinks thatshe’ll walk

Jorge Romero
Jan 17, 2012
#87
 

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86

Re: Home again [1 Attachment] Yay, Yamilla! To: aracely.romero@... From: jorgeromero51@... Date: Mon, 7 Feb 2011 05:22:34 -0800 Subject: [pompediseasefamily] Home again [1

Dawn Hanley
Feb 7, 2011
#86
 

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85

Home again Thank God she is home, again. Gracias a Dios, en casa nuevamente.

Jorge Romero
Feb 7, 2011
#85
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84

Re: On the 14 day Hello Jorge~ You keep fighting to get Yami the phsical therapy she needs. Bless you and your wife for your constant attention to your daughter and her needs.

catherine dibiase
Feb 4, 2011
#84
 

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83

On the 14 day Before the surgery, she was dancing.   Today, fourteen days after the surgery, she can't hold her legs by herself. And, of course, she can't walk or even

Jorge Romero
Feb 3, 2011
#83
 

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82

Re: Good news 5 day That is very good news. Yami is is excellent hands. Thank you so much for letting us know. I will continue to pray for her recovery and for the strength of

catherine dibiase
Jan 26, 2011
#82
 

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81

Good news 5 day On Tuesday 25, the doctors identified the bacteria that was causing the lung infection.   In the afternoon they wanted to do a bronchoscopy to look inside

Jorge Romero
Jan 26, 2011
#81
 
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