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Lumizyme reactiions

Yesterday, the second girl that received for the first time Lumizyme, also presented reactions, although less severe than my daughter.   She got nauseas and
Jorge Romero
Apr 11, 2012

Re: Yamila, March 12

This is awesome. What a beautiful personality. Mia is so shy, I cannot imagine her ever that outgoing, lol. To: jorgeromero51@... From:
Dawn Hanley
Apr 9, 2012

Yamila, March 12

Yamila is growing and showing improvements in her condition. Here in a recent concert in her school.  
Jorge Romero
Apr 8, 2012

New treatment for Pompe

It's a good news for our families. http://www.sunherald.com/2012/02/27/3779124/angiochem-forms-collaboration.html#storylink=misearch  It's a good news for our
Jorge Romero
Feb 28, 2012

Hi Suchen Tsai: The reason that we move a lot it's because we have to deal with insurance issues; and mainly we ask for help to the Doctors that are interested
Jorge Romero
Feb 20, 2012

Pompe weekdays

A normal Pompe weekdays http://youtu.be/qcQSn4PXEXQ Monday 23. Day of infusion. NEWS Myozyme is not longer produced after March 31. All children will receive
Jorge Romero
Jan 31, 2012

(no subject)

Hi Jorge,   May I ask why you move a lot? for your job or for Yami?   Harry's mom ________________________________ From: Jeffrey Schubert
suchen tsai
Jan 17, 2012

Re: Yami Rom 2012

Thanks for sharing.  I hope that Yami does well.  I think she is walking very well.  Good luck with the surgery. ... From: Jorge Romero
Jeffrey Schubert
Jan 17, 2012

Yami Rom 2012

Last week, we saw Dr. John Delahay in Kiwanis Orthopedic Clinic who recommended surgery to correct her foot position. The doctor thinks thatshe’ll walk
Jorge Romero
Jan 17, 2012

Re: Home again [1 Attachment]

Yay, Yamilla! To: aracely.romero@... From: jorgeromero51@... Date: Mon, 7 Feb 2011 05:22:34 -0800 Subject: [pompediseasefamily] Home again [1
Dawn Hanley
Feb 7, 2011

Home again

Thank God she is home, again. Gracias a Dios, en casa nuevamente.
Jorge Romero
Feb 7, 2011
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Re: On the 14 day

Hello Jorge~ You keep fighting to get Yami the phsical therapy she needs. Bless you and your wife for your constant attention to your daughter and her needs.
catherine dibiase
Feb 4, 2011

On the 14 day

Before the surgery, she was dancing.   Today, fourteen days after the surgery, she can't hold her legs by herself. And, of course, she can't walk or even
Jorge Romero
Feb 3, 2011

Re: Good news 5 day

That is very good news. Yami is is excellent hands. Thank you so much for letting us know. I will continue to pray for her recovery and for the strength of
catherine dibiase
Jan 26, 2011

Good news 5 day

On Tuesday 25, the doctors identified the bacteria that was causing the lung infection.   In the afternoon they wanted to do a bronchoscopy to look inside
Jorge Romero
Jan 26, 2011
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