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Re: [Parenting Children with Moyamoya] Surgery for Paige

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  • Jillayne MacInnes
    Dear Jennifer, I am so glad that things are moving forward and that you ve found a surgeon you re comfortable with. Please keep us posted, o.k.? You and
    Message 1 of 1 , Jun 20, 2006
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      Dear Jennifer,

      I am so glad that things are moving forward and that you've found a surgeon you're comfortable with. Please keep us posted, o.k.? You and Paige will remain in my prayers.

      Big hugs,
      Jill



      feel you can have faith in.
      > ----- Original Message -----
      > From: jnokes5 <jnokes5@...>
      > To: parentingchildrenwithmoyamoya@yahoogroups.com
      > Subject: [Parenting Children with Moyamoya] Surgery for Paige
      > Date: Tue, 20 Jun 2006 04:48:51 -0000
      >
      >
      > It's been awhile since I have posted a message but it has been crazy
      > here.Paige had a check up at St.Jude's this past week and while
      > there,we met with a neurosurgeon.He reviewed her scans from
      > Vanderbilt adn the MRI that was done during her check up.Her
      > condtion has gotten worse and he wants to do surgey soon.The surgery
      > will be done at LeBonheur Children's Hospital in Memphis where most
      > major surgeries for St.Jude patients are performed.He wants to do
      > the direct bypass because of the severity of her condition but,of
      > course it will depend on the size of the artery needed.If she is not
      > a candidate for the STA/MCA,she will have the EDAS
      > procedure.Thankfully,I did not listen to the Vanderbilt surgeon's
      > advice.Her next MRI was scheduled at Vanderbilt in August.It is
      > scary to think of what might have happened to her if we had waited
      > that long.In the past week,I have started noticing that her
      > headaches are getting worse and she is getting confused about simple
      > things and even forgetting names(sisters,grandpa,etc.)I want to
      > thank everyone who urged me to get a second opinion.I will let you
      > know when we find out the date for her surgery.
      >
      > Jennifer

      >
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