Moyamoya Syndrome - we should all be educated.
- I have been meaning to bring this topic up - even though I rarely
check this site these days.
Our son had a stroke this past January, and was diagnosed with
Moyamoya. Like most people, I had never heard of moyamoya syndrome -
so needed to do a lot of self-educating!
I am attaching a link to The Boston Children's Neurosurgery FAQs
about Moyamoya. Please go and read this!
Moyamoya is a rare condition of the vasculature in the brain. It is
seen in 1 in 2 million people of non-Asian decent, but is seen in
about 1 in 200,000 people of Asian decent. This means that at least
some of our Chinese children will end up with this (primarily)
congenital condition. Our son was adopted from China last July, and
we are so thankful that he did not have this stroke until he was
home with us where he would get the complicated medical care he
In March our son had cranial revasculaization surgery - and
THANKFULLY he is doing fine now! Dr. Michael Scott at Boston
Children's Hospital did the surgery. There are many things to
consider when considering the surgery and who will do it!
I am willing to answer any questions I can for families that have
questions or are dealing with this situation. Please just email me
Also, please go read the FAQs about moyamoya on this link:
Cheryl in NM
P.S. Tom B - if you still lurk and see this post - would you please
write to me! Thanks, and hello to GuGu from all of us!
Sorry about that gang!
I clicked on the wrong group and posted this here! I meant to post it
to my China Adoption group!
Ah well, at least you all now have the link to Dr. Scott's FAQs!!
Cheryl in NM
--- In email@example.com, "Cheryl in NM"
> I have been meaning to bring this topic up - even though I rarely
> check this site these days.