- --- mikeiz12 <email@example.com> wrote:
> My son Charlie is having surgery on July 15 with Dr.Scott. The first few days after she really had no
> Scott. Any
> advice about things to know or bring to the
> thanks, Sheila
> Hi, Sheila. My daughter also had surgery with Dr.
interest in anything. I had brought lots of presents
and she'd open them but didn't have much energy to
play with them.
You should prepare yourself for Charlie to really look
bad after surgery. My daughter's one eye was swollen
shut and her head was huge. It seemed like it was
getting better and then it swelled more. There's also
lots of tubes and monitors in the ICU, it's scarey and
comforting at the same time.
The folks at Boston Children's are fabulous, they
really know how to take care of moyamoya kids.
They have a liaison nurse who will update you every 90
minutes during the surgery. You check in with her
once you get to the waiting room. If you need to
leave, you can ask her for a pager so they'll be able
to get in touch with you.
Also, my daughter wouldn't eat for a couple of days
after surgery. I realized it was because of the
incisions on both sides of her head made it hard to
open her mouth. We got her a soft cinnamon bun at Au
Bon Pain and she was able to let it melt in her mouth
without chewing. That really helped her to perk up a
bit. She had surgery on Tuesday, was really still
seeming very weak on Thursday. On Friday she woke up
practically a different kid and on Saturday, when we
were discharged, she skipped out of the hospital. It
truly was a miracle.
By the way, my daughter's birthday is July 15th, so
that's an excellent day for your son to have his
surgery, I just know it's a good luck sign. Also
we'll be sure to remember to pray for him.
If I can answer any more questions, just let me know.
I know how scarey it is, but for us it was well worth
it. My daughter is doing great and really leading a
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- Thanks to everyone for your thoughts and prayers. Charlie made it
through the surgery without any complications. Dr. Scott was very
nice. Charlie came home last night and we are so happy to be all
together. thanks again