Re: [Parenting Children with Moyamoya] YuYu update 2/26/06 -heading to Boston...
- Hi.. I am so happy for you that you have your surgery date! We are heading
out to California to see Dr Steinberg on the day of your son's surgery. My son,
who is 21, is having his first surgery on the 14th... we will be staying in
California for approx a month... my son has varient of moya moya.. the back
of the brain also has occulsions and has an odd vasularization going on back
there that Dr Steinberg wants to study further and to see if at all there can
be surgery done to that area of the brain... We had a horrible night in the
ER yesterday.. Keith had another TIA that was the worst one yet... although
they found no new damage... we have to make a trip to houston from ft polk ( a
four and half hour ride) to see his neurologist this week because of last
night... so we are on pins and needles at this point.... there is definitely a
guardian angel looking over my son's shoulder because we thought for sure he
was having a full stroke last night because he could barely talk and
completely numb on the right side again.... that is where the last stroke effected
Will keep you in our prayers....
In a message dated 2/26/2006 12:45:55 A.M. Central Standard Time,
Hello, I am new here, but wanted to share this with you all.
I just wanted to let you know that our son,YuYu's surgery (cranial
revascularization by pial synangiosis) is scheduled for March 6th at
Boston Children's Hopsital.
YuYu was adopted from China 6 months ago - he is 4 years old. He had
a stroke one month ago and has been diagnosed with moyamoya
We fly to Boston on Wed. March 1st, meet with the neurosurgeon (Dr.
Michael Scott) on March 2nd, and then have a couple of days before
YuYu needs to be admitted to the hospital on March 5th, and surgery
on the 6th. We will be so appreciative of all the good thoughts and
prayers that any and all are willing to send up for our precious son.
Right now YuYu is stable. He has had no other strokes or TIAs
(trasiant ischemic attacks) since the one on Jan.22nd, and this is
the best possible news since there is a direct correlation between
how he presents for surgery with his long term pronosis (as long as
he makes it through the surgery and immediately after the surgery
without any further adverse events.
We love this child more than words can say, and all of the people
that have been so kind, and so loving and generous with us - your
prayers especially -are appreciated so much. We know that we have
been blessed to have this child come into our lives to be our dear
son...and we so want him to be well again.
My family and I thank you all from the bottom of our hearts for your
friendship, your love, and your support during this emotional and
trying time. Reading the posts on this group have been very helpful
to our family.
With our sincere love and appreciation,
Cheryl, Paul, LiLi and YuYu in New Mexico!
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