Re: 8 Year old daughter with NF1 and Occluded artery, possible Moya Moya
- --- In
> My three-year old daughter has NF1. She had a TIA on Feb. 1 and was
> diagnosed with MoyaMoya the next day. Dr. Scott performed surgery
> Tuesday, May 13th on her right side. She didn't complain of painsend
> much, and didn't have hardly any swelling until Thursday morning.
> The swelling went away quick and we were discharged early Friday
> morning. She has had no further episodes and now, you wouldn't even
> know that she had surgery. Like you, we consider ourselves to be
> very fortunate that this was caught early and that she suffered no
> permanent damage. If you would like to talk to me, feel free to
> me an e-mail and I will give you my phone number. You will be in
> great hands in Boston; they know alot about NF and MM.
> You, your daughter and your family will be in my thoughts and