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Re: Juliana

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  • chbrigger
    Dear Kevin, We are sorry that you had to find our website, but are glad you did. I have two children with moyamoya and both had surgery with Dr. Scott. He is
    Message 1 of 7 , May 24, 2005
      Dear Kevin,

      We are sorry that you had to find our website, but are glad you
      did. I have two children with moyamoya and both had surgery with
      Dr. Scott. He is a wonderful human being. He was so great with the
      kids, they still talk about how great Dr. Scott is and ask when they
      are going to go see him again. Clark and I had complete confidence
      in him and he really put us at ease. He has always been there to
      answer any questions we had.

      I have heard good things about CHOP but we too went to Dr. Scott
      because of his expertise and we could tell from the first phone
      conversation what a caring man he was.

      If you have any questions please ask away. It is a difficult time,
      our kids had surgery 5 years ago and are doing great.

      We will keep you in our thoughts and let us know how Juliana is
      doing.

      Heather Brigger
    • kevin_c86
      Juliana s surgery date is set. We will be going to Boston on June 6 and her surgery will be on the 7th. Thank you all for your help and support. Kevin, Mary
      Message 2 of 7 , May 27, 2005
        Juliana's surgery date is set. We will be going to Boston on June 6
        and her surgery will be on the 7th. Thank you all for your help and
        support.

        Kevin, Mary and Juliana.
      • jane wood
        Hope all goes well Jane and Family. kevin_c86 wrote: Juliana s surgery date is set. We will be going to Boston on June 6 and her surgery
        Message 3 of 7 , May 27, 2005
          Hope all goes well

          Jane and Family.



          kevin_c86 <kevin_c86@...> wrote: Juliana's surgery date is set. We will be going to Boston on June 6
          and her surgery will be on the 7th. Thank you all for your help and
          support.

          Kevin, Mary and Juliana.






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        • mandy harmon
          Kevin, My daughter had surgery with Dr Scott in Boston in 2000 and 2001. We were living in SC at the time. Currently we are in PA. This past January my
          Message 4 of 7 , Jun 2, 2005
            Kevin, My daughter had surgery with Dr Scott in Boston in 2000 and 2001. We
            were living in SC at the time. Currently we are in PA. This past January my
            daughter had some issues and we went to CHOP. Dr. Ichod is a wonderful DR.
            One of the smartest I have seen. She knows Dr. Scott, they have worked
            togather on at least one other case. (We always ask now that he be
            conferred with if there are any issues with my daughter) I love CHOP, all
            of our specialist are there, however, if my child needs surgery for MOya
            Moya again, and it is in any way finiancially possible I will make the trip
            to Boston. Dr. Scott is the guru of Moya Moya. I hope this helps.

            Mandy

            >From: "kevin_c86" <kevin_c86@...>
            >Reply-To: parentingchildrenwithmoyamoya@yahoogroups.com
            >To: parentingchildrenwithmoyamoya@yahoogroups.com
            >Subject: [Parenting Children with Moyamoya] Juliana
            >Date: Fri, 20 May 2005 23:49:27 -0000
            >
            >This is my first post. Our daughter Juliana has been monitored for
            >Neurofibromatosis since she was 8 weeks old. Last year she was
            >officially diagnosed with the condition, as part of her observation
            >she needs to get MRI's of the brain. Last year it was noticed that
            >her left side internal carotid was missing. This year we were told
            >that she has Moyamoya syndrome and is at risk of having a stroke at
            >anytime. We currently are taking her to Children's Hospital of
            >Philadelphia. We think that he Neurologist is wonderful (DR. Rebecca
            >Icord), the Neurosurgeon there wants to operate on her but we are
            >apprehensive since we are unsure of his knowledge of Moyamoya. We
            >have been in contact with Dr. Scott in Boston and he has called us on
            >several occasions we think he is a wonderful human being. He is going
            >out of town next week but after that he wants to do surgery on our
            >daughter. I am not really sure if I am asking a question here but
            >maybe just looking for a little reassurance.
            >
            >Kevin M. Cave
            >
            >
          • kevin_c86
            Juliana had her surgery yesterday with Dr. Scott. He was very happy with surgery and said it went even better then he thought. Juliana is still in the ICU
            Message 5 of 7 , Jun 8, 2005
              Juliana had her surgery yesterday with Dr. Scott. He was very happy
              with surgery and said it went even better then he thought. Juliana is
              still in the ICU but is recovering fast and will transfer to another
              roo this afternoon. Thank you all for your support.

              You've been invited to visit Juliana Cave's online CarePage.
              A personalized Web page, called a CarePage, has been created
              for Juliana, so you can easily receive
              the latest news, view photos and share messages of support.

              To visit the CarePage, please click the link below:

              http://www.carepages.com/ServeCarePage?cpn=julianacave
            • jane wood
              Thats good news, thinking of you at this time Jane and family x kevin_c86 wrote: Juliana had her surgery yesterday with Dr. Scott. He
              Message 6 of 7 , Jun 16, 2005
                Thats good news, thinking of you at this time Jane and family x


                kevin_c86 <kevin_c86@...> wrote: Juliana had her surgery yesterday with Dr. Scott. He was very happy
                with surgery and said it went even better then he thought. Juliana is
                still in the ICU but is recovering fast and will transfer to another
                roo this afternoon. Thank you all for your support.

                You've been invited to visit Juliana Cave's online CarePage.
                A personalized Web page, called a CarePage, has been created
                for Juliana, so you can easily receive
                the latest news, view photos and share messages of support.

                To visit the CarePage, please click the link below:

                http://www.carepages.com/ServeCarePage?cpn=julianacave






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                Yahoo! Groups Links

                To visit your group on the web, go to:
                http://groups.yahoo.com/group/parentingchildrenwithmoyamoya/

                To unsubscribe from this group, send an email to:
                parentingchildrenwithmoyamoya-unsubscribe@yahoogroups.com

                Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



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