Re: [Parenting Children with Moyamoya] Pre-surgery and precautions
I am actually an adult (23 years old) that was diagnosed when I was
8. I remember I was always okay in PE class. I had to wear a helmet
after surgery, it was like my cast. I played soccer and it was no
problem. Hyperventilation does throw me into headaches and TIA's but
only if it is somewhat artificial, like when I laugh, or cry really
I hope this helps.
Sara (Houston, TX)
--- In firstname.lastname@example.org,
> Danette, we were told that my daughter needed a
> spotter if she was going to be up on any equipment.
> She also was not to get dehydrated or hyperventilate.
> They wrote a plan for this at school, but I still had
> to remind them from time to time. The reason she
> needed a spotter was because her neurologist was
> afraid she might fall if she had a TIA or a seizure.
> We were also told no baths by herself although showers
> were okay.
> As far as the headaches go, Maddie's neurologist
> prescribed 250 mgs of diamox. It really helped when
> she took it on a regular basis. She doesn't get
> headaches (thank God) too often anymore so we stopped
> the diamox. Diamox attaches oxygen molecules to the
> blood stream which helps with flow. If your son's
> headaches are a result of poor blood flow it might
> work for him too.
> --- dmvcpa_drogers <dsrogers93@b...> wrote:
> > I am curious...
> > was anyone given any precautions on PE in school
> > for the time
> > period before surgery? Is there ANY limitations for
> > this time
> > period? We go to the neurologist on Monday, but I am
> > curious if I
> > need to be doing anything different in the mean
> > time.
> > Austin cried himself to sleep last night with his
> > head hurting. I
> > hate it when I can not make it "go away". I hope I
> > can find out
> > something to help him.
> > Thanks,
> > Danette
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