Re: Surgery in Boston?
- Sue, My son and daughter have both had pial
synangiosis at Children's in Boston and are doing very well,
they both have Moyamoya. We were very pleased with the
results, Erik has just had his one year angiogram this
last October and everything looks wonderful. Katie
will be 2 years post surgery at the end of December
and is doing excellent as well, she suffered two
major strokes before surgery, but none after. She is
recovering very well. Dr Scott is our hero. He is wonderful
to work with and easy to talk to. We have recently
moved to the D.C. area and Dr. Scott recommended Dr.
Cogen if we ever needed anything. We have our first
visit with Dr. McClintock, neurologist,this week, just
a check up. If you would like to contact me with
questions my email is chbrigger@.... We have been
through this difficult process twice. If you need any
advice on the stay in Boston let me know as well.
- Hello Ida,<br> I too would love to chat...You can email me here at Leilei543@.... I have a 5 year old son with moyamoya. He was diagnosed last spring and had surgery this past August.