RE: [Parenting Children with Moyamoya] hello!!
- migraines have been reported as a symptom. I know in adults moya moya can
cause aunirisims. I was told with my child that blindness was rare with it.
Do you still have regular mri's?
It could be a lack of blood flow causing some of the pain- just a thought.
It is a progressive disease and many Drs say surgery is the only way to help
it. I am assuming you are on blood thinners?
>From: "peachums2001" <peachums2001@...>_________________________________________________________________
>Subject: [Parenting Children with Moyamoya] hello!!
>Date: Thu, 12 Feb 2004 16:52:26 -0000
>I know this chat room is for parents for children with moyamoya but
>I am an adult diagonosed w/ moyamoya 25 years ago at the age of 23.
>None of my drs took (take) the diagnosis seriosly-- I don't really
>think any of them know what it is. Anyway - 25 years ago- my eye
>was affected and I know longer have use of the eye. I never had
>surgery but as far as I know, nothing else has gone bad. That leads
>me to my question:
>Does moyamoya cause pain? I have extreme pain in all my extremities.
>I have been diagnosed with fibromyalgia but since I recently
>discovered moyamoya web sites-- I am wondering if pain is a symptom
>or progession of the illness.
Plan your next US getaway to one of the super destinations here.
- I am not aware of any pain aside from headaches. Why don't you email Dr.
Scott in Boston and ask him....even though he is a pediatric specialist, he could
probably help you.
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