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Re: [Parenting Children with Moyamoya] New Diagnosis - Need Information

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  • LONNIE NORMAN
    hello I am from Florida and we see a doctor at The University of Gainesville We started seeing DR. Mickle he left and now we are seeing Dr. Pincus I do not
    Message 1 of 9 , Jan 1, 2004
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      hello I am from Florida and we see a doctor at The University of Gainesville We started seeing DR. Mickle he left and now we are seeing Dr. Pincus I do not know where in Florida you are but you may want to check out this location just to see so that you may not have to travel to far. The other doctor we see is Dr. Carney My daughter is now 6yrs. old, she was diagnosed when she was 11 mths old with MOYA MOYA so I can give you more information if needed
      Sandy

      marlew47 <marcia.danzeisen@...> wrote:
      My 14-month old daughter, Chloe, had a stroke within the last 7 days
      and the neurologist found evidence of a small prior stroke on the
      MRI. They suspect moyamoya. He suggests we go to a specialist for the
      advanced testing and ultimate diagnosis and he recommends a doctor at
      JohnHopkins, but it seems that the majority of references on this
      site are to a Dr. Scott in Boston. We live in Florida, but will
      travel anywhere for the best treatment. He put her on lovinox for
      three weeks, then will go to aspirin for short term therapy to
      prevent further strokesn until diagnosis and treatment. What is the
      surgery everyone refers to on this site? We are scared and
      devastated. She was paralyzed on the left side, which alerted us, but
      is regaining movement every day.



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