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Re: [Parenting Children with Moyamoya] New Diagnosis - Need Information

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  • mdkempes@aol.com
    This is the link to the website. http://www.boston-neurosurg.org/publications/faq/moyamoyaRMS.shtml I also found it extremely informative.....Goodluck.
    Message 1 of 9 , Dec 30, 2003
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      This is the link to the website.

      http://www.boston-neurosurg.org/publications/faq/moyamoyaRMS.shtml

      I also found it extremely informative.....Goodluck.


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    • LONNIE NORMAN
      hello I am from Florida and we see a doctor at The University of Gainesville We started seeing DR. Mickle he left and now we are seeing Dr. Pincus I do not
      Message 2 of 9 , Jan 1, 2004
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        hello I am from Florida and we see a doctor at The University of Gainesville We started seeing DR. Mickle he left and now we are seeing Dr. Pincus I do not know where in Florida you are but you may want to check out this location just to see so that you may not have to travel to far. The other doctor we see is Dr. Carney My daughter is now 6yrs. old, she was diagnosed when she was 11 mths old with MOYA MOYA so I can give you more information if needed
        Sandy

        marlew47 <marcia.danzeisen@...> wrote:
        My 14-month old daughter, Chloe, had a stroke within the last 7 days
        and the neurologist found evidence of a small prior stroke on the
        MRI. They suspect moyamoya. He suggests we go to a specialist for the
        advanced testing and ultimate diagnosis and he recommends a doctor at
        JohnHopkins, but it seems that the majority of references on this
        site are to a Dr. Scott in Boston. We live in Florida, but will
        travel anywhere for the best treatment. He put her on lovinox for
        three weeks, then will go to aspirin for short term therapy to
        prevent further strokesn until diagnosis and treatment. What is the
        surgery everyone refers to on this site? We are scared and
        devastated. She was paralyzed on the left side, which alerted us, but
        is regaining movement every day.



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