Loading ...
Sorry, an error occurred while loading the content.

Re: [Parenting Children with Moyamoya] New Diagnosis - Need Information

Expand Messages
  • marlew47
    What is the url for the web site. I can t find it. In parentingchildrenwithmoyamoya@yahoogroups.com,
    Message 1 of 9 , Dec 30, 2003
    • 0 Attachment
      What is the url for the web site. I can't find it.




      In parentingchildrenwithmoyamoya@yahoogroups.com, <dareinhart@y...>
      wrote:
      > Dr. Scott is the foremost authority on moyamoya in the
      > US. There are other doctors who have successfully
      > treated moyamoya patients, but if you're willing to
      > travel, I would at least seek Dr. Scott's opinion. If
      > you go to the Boston Neurological Society's web site,
      > Dr. Scott has prepared FAQs on moyamoya and moyamoya
      > surgery.
      >
      > In order to diagnose your daughter, she will have to
      > have an MRA and/or an angiogram. Dr. Scott requires
      > an angiogram prior to surgery so that he has a full
      > picture of all the blood vessels.
      >
      > Why don't you call him, he is very receptive. The
      > phone number is 617-355-6011.
      >
      > Good luck.
      >
      > Denyse
      >
      > --- marlew47 <marcia.danzeisen@c...> wrote:
      > > My 14-month old daughter, Chloe, had a stroke within
      > > the last 7 days
      > > and the neurologist found evidence of a small prior
      > > stroke on the
      > > MRI. They suspect moyamoya. He suggests we go to a
      > > specialist for the
      > > advanced testing and ultimate diagnosis and he
      > > recommends a doctor at
      > > JohnHopkins, but it seems that the majority of
      > > references on this
      > > site are to a Dr. Scott in Boston. We live in
      > > Florida, but will
      > > travel anywhere for the best treatment. He put her
      > > on lovinox for
      > > three weeks, then will go to aspirin for short term
      > > therapy to
      > > prevent further strokesn until diagnosis and
      > > treatment. What is the
      > > surgery everyone refers to on this site? We are
      > > scared and
      > > devastated. She was paralyzed on the left side,
      > > which alerted us, but
      > > is regaining movement every day.
      > >
      > >
      >
      >
      > __________________________________
      > Do you Yahoo!?
      > New Yahoo! Photos - easier uploading and sharing.
      > http://photos.yahoo.com/
    • mdkempes@aol.com
      This is the link to the website. http://www.boston-neurosurg.org/publications/faq/moyamoyaRMS.shtml I also found it extremely informative.....Goodluck.
      Message 2 of 9 , Dec 30, 2003
      • 0 Attachment
        This is the link to the website.

        http://www.boston-neurosurg.org/publications/faq/moyamoyaRMS.shtml

        I also found it extremely informative.....Goodluck.


        [Non-text portions of this message have been removed]
      • LONNIE NORMAN
        hello I am from Florida and we see a doctor at The University of Gainesville We started seeing DR. Mickle he left and now we are seeing Dr. Pincus I do not
        Message 3 of 9 , Jan 1, 2004
        • 0 Attachment
          hello I am from Florida and we see a doctor at The University of Gainesville We started seeing DR. Mickle he left and now we are seeing Dr. Pincus I do not know where in Florida you are but you may want to check out this location just to see so that you may not have to travel to far. The other doctor we see is Dr. Carney My daughter is now 6yrs. old, she was diagnosed when she was 11 mths old with MOYA MOYA so I can give you more information if needed
          Sandy

          marlew47 <marcia.danzeisen@...> wrote:
          My 14-month old daughter, Chloe, had a stroke within the last 7 days
          and the neurologist found evidence of a small prior stroke on the
          MRI. They suspect moyamoya. He suggests we go to a specialist for the
          advanced testing and ultimate diagnosis and he recommends a doctor at
          JohnHopkins, but it seems that the majority of references on this
          site are to a Dr. Scott in Boston. We live in Florida, but will
          travel anywhere for the best treatment. He put her on lovinox for
          three weeks, then will go to aspirin for short term therapy to
          prevent further strokesn until diagnosis and treatment. What is the
          surgery everyone refers to on this site? We are scared and
          devastated. She was paralyzed on the left side, which alerted us, but
          is regaining movement every day.



          ---------------------------------
          Yahoo! Groups Links

          To visit your group on the web, go to:
          http://groups.yahoo.com/group/parentingchildrenwithmoyamoya/

          To unsubscribe from this group, send an email to:
          parentingchildrenwithmoyamoya-unsubscribe@yahoogroups.com

          Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.



          ---------------------------------
          Do you Yahoo!?
          Yahoo! Photos - Get your photo on the big screen in Times Square

          [Non-text portions of this message have been removed]
        Your message has been successfully submitted and would be delivered to recipients shortly.