- Jan 17, 2008Lora,
Our daughter Juliana is 6yrs old, and is 2 1/2yrs post/op for Moya
Moya. Boston Childrens Hospital, Dr R.Michael Scott is her surgeon
there and he is a God send. I agree with Allen, keep faith.
Juliana has a long road ahead of her as well, she does have
It is absolutely heartbreaking to watch your precious child go
through any invasive procedure, surgery, disease, and more. Their
resilience & strength is Life learning to anyone who observes.
We support you, we will pray for you, your family & care givers.
Please embrace this connection that we have and allow it to comfort
you in some way.
May God's grace bless you, Mary Cave & family
--- In firstname.lastname@example.org, Laurie Park
>that you are not alone. And feel free to pour your heart out any time
> How is Meadow doing?
> Just know that we have all been through the same heartache and
it needs it! I was pretty strong during Samantha's hospital stay. My
emotional breakdowns occurred (and still do) on days like teacher
appreciation day when I thank the school nurse for her help and
attentiveness to Samantha's migraines. A commercial on tv or movie
can trigger an emotional reaction out of the blue as well.
> Keep us posted when you can. Our thoughts and prayers are with
> Laurieworse than it really is when you're overtired.
> P.S. Make sure you get some sleep. Everything looks 10 times
> Lora <lorabeas@...> wrote:
> Hi everyone,
> I am new to the group. I was referred by another MMD parent.
> My daughter, Meadow, is currently in ICU at Lucile Packard
> (at Stanford). Dr. Steiberg did her second operation yesterday(left).
> She had her first EDAS last Tuesday the 8th.of
> I was told that she will remain in ICU again tonight, because some
> her lab work was abnormal. My daughter also has panhypopituitarism,and
> which makes things a little more complicated. Her sodiums have
> flucuated, and she has some increased urine output. Also her
> hematocrit is a little low. Her blood pressures are better today,
> she is off the IV drip (that keeps it stable.)but
> I hope that everything will stabilize soon. She can't have any
> foods/liquids until her MRI today. I have been patiently waiting,
> almost had a meltdown. I have held up so well...but I think I mayhave
> held everything in too long. My mom went back with Meadow to giveme a
> relief. Writing to you all is my relief! I guess getting everythingMy
> off my chest is relieving. Meadow just looks so pale. It makes my
> heart ache.
> Well, I guess I have just poured my heart out! I look forward to
> meeting others here, it is a scary thing to go through for any one.
> little Meadow is so strong, she amazes me.
> Take care,
> Never miss a thing. Make Yahoo your homepage.
> [Non-text portions of this message have been removed]
- << Previous post in topic Next post in topic >>