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686Re: 8 Year old daughter with NF1 and Occluded artery, possible Moya Moya

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  • smilingfacescj
    Feb 17, 2006
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      --- In
      parentingchildrenwithmoyamoya@yahoogroups.com, "trekkierick2002"
      <trekkierick@...> wrote:
      >
      > Julia,
      >
      > My three-year old daughter has NF1. She had a TIA on Feb. 1 and was
      > diagnosed with MoyaMoya the next day. Dr. Scott performed surgery
      on
      > Tuesday, May 13th on her right side. She didn't complain of pain
      > much, and didn't have hardly any swelling until Thursday morning.
      > The swelling went away quick and we were discharged early Friday
      > morning. She has had no further episodes and now, you wouldn't even
      > know that she had surgery. Like you, we consider ourselves to be
      > very fortunate that this was caught early and that she suffered no
      > permanent damage. If you would like to talk to me, feel free to
      send
      > me an e-mail and I will give you my phone number. You will be in
      > great hands in Boston; they know alot about NF and MM.
      >
      > You, your daughter and your family will be in my thoughts and
      > prayers.
      >
      > Ricky
      >
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