457Re: [Parenting Children with Moyamoya] hi~my daughter was just diagnosed with...
- May 10, 2004Hillary, I'm so glad all went well. We kept Kathleen out of school too while
we waited for surgery.We had become obsessed with keeping her helathy.Not to
mention keeping an eye on her too.Just before she was diagnosed she ahd had a
sinus infection. One day at preschool the teacher said wow Kathleen must have
been tired she put her head down on the carpet at circle time and didn't come
back up they thought she fell asleep I really think this was the beginning of
ehr strokes.I was so angry at myself for not being with her.What grade is
your daughter in? have they offered you andy tutering at home?
I know how you feel the waiting and watching was almost unbearable at
times.We just wanted the surgery to be over with.Kathleen actually had a stroke on
the way to Boston for surgery.I was so scared that they would have to
postpone ehr surgery and we would have to take her home and wait.It is wonderful that
you have so much support to be with you.That is so hlepful.My sisters came to
Boston with us for ehr surgeries.I can't imagine being alone waiting for the
surgery to end.Please if you need to tlak to someone feel free to give me a
call.Welive in NY.I know how helpful it can be to tlak about it.Especially now
when it's all you can think about. Please know you are in our prayers.
Mary Grace 518-477-2282
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