23My son has moyamoya too!
- Nov 3, 2001My son is 10 yrs. old and was diagnosed with
moyamoya when he was 3. He had a massive stroke, which led
to 2 brain surgeries at Mayo in Mn. He than
continued to have more strokes and more trouble which led
to even more surgery, this time in Stanford, CA. He
has been doctoring with Dr. Steinberg and we are due
to go back again with more trouble this time it is
CSF leak, trouble with his blood pressure, bad
headaches, and being really dizzy. They want us out there
ASAP, but I am unable to till Dec. or early Jan. There
is absolutely NO help in ND with this and the
doctors here are afraid to do anything for my son. Sure
would like someone to chat with sometime or e-mail. My
e-mail is: barbisaak@...
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