175Re: New Diagnosis
- Jun 3, 2003--- In email@example.com, olive_turley
> My niece of 20 months was diagnosed with Moya Moya yesterday inthe
> UK. Do any of you have websites for US treatment centres with #of
> operations carried out etc?I have read all of the messages attached to this one, and I am sorry
for your neice's diagnosis, but the good news is that the treatments
are very effective.
My son was 13 when diagnosed and underwent the indirect
approach.That was 2 years ago, and yes it does take 6 months, to a
year for the vessels to fully develop, but we started seeing
improvement immediately. The TIA's became less and less frequent,
and less and less severe. His last TIA was about 6 months ago, and a
year before that one. He functions like a normal boy of age 15 now,
with the exception of wearing a helmet for many activities, that
other boys of that age might not.He was not a candidate for the
direct approach because of the location of his blockages, and we
could not be more pleased with the Dr. the hospital, or the
procedure. the Dr. fully expects him to get to a point where he has
no more Tia's at all.
He has a beautiful voice, and is very involved in Chorus, Jazz
Choir, Madrigals, etc, and I thank God every time I see him, or hear
his voice that we were able to get help for him. I hope your neice
gets the same quality care and does well.
Please feel free to contact me at my email address if you would like
more information. djkmomo3@...
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