Oh, your story sounds all too familiar and I am so sorry for you. Many of
us have gone through similar battles and some of us continue to do so. I don't
think that any of this should affect how future employers view you. It is
horrible when dealing with getting coverage or compensation to live on is as
challenging as being sick.
One thing that I've found useful is to go through my US Senators. I don't
know what state you're in but they are able to submit claims/letters to the
department of labor/medical bills that haven't been paid/requests for
pre-approval for medical care that you haven't been able to get through or get
answers to. It doesn't reflect on your "record." All they do is to submit what
you are struggling with but when they send it in the OWCP takes notice and
responds quite quickly, in my history, at least.
I would phone each of your two US (not state) senators' offices and find
who the contact person is in each office that interfaces with the USDOL and send
your photocopied materials directly to the attention of that individual but
write the letter to Honorable... whomever. If you are in NY I can give your
personal contact info. It's a strategy that has helped me. If you try this tact
you might even be able to get pre-approval to seek treatment at your particular
hospital and if you have pre-approval in letter form your institution may be
willing to actually take you and do the billing. I have been able to accomplish
this. I know how horrible it is not to get the care you need because no one is
willing to deal with the billing issues - and with good reason.