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Group Description

Welcome to the Ostomy Stars group! All are welcome here. In light of the news that the United Ostomy Association has closed its doors, I felt a strong desire to start this group. I am a mother of a 13 month old baby girl who was born with small omphalocele, colonic atresia, and imperforate anus. We were told to abort from the onset, but she is doing GREAT!

When we first heard the word "colostomy", my husband and I cried. Let's face it. We were scared. We dreaded the idea of our daughter wearing a bag her entire life. She had another surgery in January, to possibly reconnect her colon to her anus. However, she does not have enough intestine, or enough sphincter, to do that. We want to be here to support other families of children with colostomies, and to offer support. Not much is known about colostomies, and we want to change this! (You should have seen the lady at the Picture People when she saw the bag!)

I am excited to see this group as a forum where different surgical options can be discussed, as well as day-to-day living with a colostomy, and also all that is involved in recovering from pull-through surgery. Our older members can shed some light on this.

As a part of your joining, please submit a short intro. The rest of the members can then get to know you through that!


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