This is from Karen on Scott's list...I got permission to forward her
"remarkable" results with Rituxan.
>>Yes, initially my disease was low grade B cell. Then it transformed
>>to high grade and then back to low grade etc. It can happen. I'd
>>be delighted if you forwarded a copy of my email to Ben. I hope my
>>post inspires others to try out this new antibody.
> Hi Folks,
> It gives me soooo much pleasure to be posting a mail with such
> positive information. "Absolutely remarkable," were my Consultants'
> words this morning, upon examination. I completed 4 infusions of
> the monoclonal antibody, 'Rituxan' on 29th December. I appear to
> have achieved a partial remission on a very persistant abdominal lymphoma!
> As some of you already know, I've had over 11 types of treatment during
> my 3 1/2 years of fighting this thing and in my twenties, I've lost a lot of
> living. However, I'm planning to make up for things, as I now feel that
> the future is finally mine for the taking. Rituxan has provided me
> with a chance of recovery, stability, normality and above all, hope.
> I'm having a scan in around two weeks to establish just how much
> disease is left. We talked about Interferon but feel that since
> Rituxan can continue to have an effect at around 50 days post infusion, then
> important to see if there could be any further developments before I
> try a maintenance treatment. It's unclear whether or not I had
> lymphoma inflitration in my liver or as a result of previous chemos, however
> LFT's are definately improving, therefore, the Rituxan has been good for that
> My platelets are finally showing signs of a rise, fatigue still
> bothers me but if I pace myself, then I can achieve a lot. My
> neutraphils have significantly dropped to 0.7 which is disappointing
> but I'm nursing a cold at the moment and this is just proof that it
> doesn't take a hell of a lot to knock my counts. GCS-F could be
> administered if necessary.
> If anyone can get the chance to try Rituxan, then my advice is, GO
> FOR IT. It's a fairly easy treatment and I'm living proof that even
> when you've tried everything else, there is always something around
> the corner. These things have a habit of turning out alright in the
> God bless you all!
> With best wishes