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MdDS is typically diagnosed when a person reports a persistent rocking feeling (though they are not necessarily rocking). This USUALLY follows a cruise or other motion experience. Because most vestibular testing proves to be negative, doctors may be baffled as they attempt to diagnose this rare neurological syndrome. Many doctors believe MdDS occurs when your brain did not return to a normal sense of balance after adapting to a motion experience. A major diagnostic indicator is that most of us feel BETTER while driving or riding in a car or while in passive motion.

If you suspect you have MdDS, sign up for free membership and review or search the thousands of messages from those who suffer from MdDS (sponsored by the MdDS Balance Disorder Foundation.) Here, you will find caring people who understand what it's like to live with this rare disorder. This site requires that you subscribe by indicating why you believe you have MdDS. Our members are welcomed from many countries, so feel free to contact us.

To join, send an email to:
mdds_support-subscribe@yahoogroups.com

You will also find substantial information about Mal de Debarquement Syndrome at our public site at: www.mddsfoundation.org such as a library of biomedical articles and current research recruiting articles.

The MdDS Balance Disorder Foundation is a 501(c)(3) nonprofit foundation operated by volunteers who have the disorder. Donations will support our efforts to promote international awareness of Mal de Debarquement Syndrome (MdDS). We seek and support research toward treatments and a cure for people suffering from this disorder.

To donate visit www.mddsfoundation.org/donate or make out checks to MdDS Balance Disorder Foundation and send them to:
MdDS Balance Disorder Foundation
c/o Marilyn Josselyn
22406 Shannondell Drive
Audubon, PA 19403

The Foundation does not diagnose or offer medical advice. Please consult with your doctor to develop a plan of action.

Group Information

  • 1616
  • Advice
  • Oct 23, 2003
  • English

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