Re: [The Ileostomy Group] new to the group
- Hi! Rose,
I am Diana the mod of the group.
There are many people that are part of this group hopefully someone with
have answer for you if you have any questions along the way.
I am glad your feeling well and you sound happy.
You have a great day.
Thanks for sharing your story with us here.
Date: 07/31/10 18:40:20
Subject: [The Ileostomy Group] new to the group
Hello my name is Rose I am 28, will be 29 soon..I have had my ileostomy
since march....have not named my stoma yet, though, and I have seen some of
you have thats a very good idea..I am supposed to have a j pouch done
someday...they could not make it 1. because I was to sick when I had the
surgery, and 2. I am a very big person and my small intestine wouldnt
connect so I have to lose weight to finish my surgery...but now I have
gotten so used to my ileostomy that I might not want the j pouch because
visions of having a sort butt like I used to have seem horrific and running
to the bathroom!! yes, I still have other symtoms of UC such as dry skin,
sore joints once in a while, and a little fatigue. But the worst part
(running to the bathroom bloody stool and abdominal pain) are history!! and
I have never felt better in my life...
The Ileostomy Group is part of Crohn's Zone IBD Network at www.crohnszone
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