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21 y/o with PKU

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  • Christopher Friedrich MD PhD
    Hello - are you aware we have a clinic for adults with PKU in the Medicine Department at the Hospital of the University of Pennsylvania? Chris Friedrich, M.D.,
    Message 1 of 5 , Jun 30, 2000
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      Hello - are you aware we have a clinic for adults with PKU in the
      Medicine Department at the Hospital of the University of Pennsylvania?

      Chris Friedrich, M.D., Ph.D.
      Division of Medical Genetics, Dept. of Medicine



      (215) 662-4740>
      > Crystal:
      >
      > I am the co-administrator of a support listserv for the birth defect known as
      > PKU (phenylketonuria) which is very similar in treatment to that of Maple
      > Syrup Urine Disease. Some of the people on our listserv have children with
      > MSUD.
      > If you would like, I can sign you onto our listserv and you can post a
      > message there which, I am sure, will get you several responses from MSUD
      > families.
      > Just send me your first and last name along with your email address and I
      > will sign you up immediately. You can always sign off the listserv if you do
      > not find it helpful.
      >
      > Lin
      > Mom to Daniel, 21 y/o
      > Classical PKU
      > Philadelphia, PA
      >
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