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Group Description

A support group for anyone who has or is being tested for Conn's Syndrome or Conn's Disease. Conn's is also known as Hyperaldosteronism and is caused by one of several abnormalities in the adrenal glands. If there are tumours causing the abnormality they are usually not malignant (not cancer) and may be in one or both adrenal glands.

Conn's is the most common cause of diffiult to control hypertension. It is likely the cause of high blood pressure in 10% all with high blood pressure. If you have Conn's Disease you are a very special person and you can benefit from the many on this site who have Conn's and from Dr. Grim's long term experience in this problem. Indeed, he trained with Dr Conn at the Univ. of Michigan in Ann Arbor.

Our long term goal is to train you and your health care team how to diagnose and manage folks like you so they don't miss the next Conn's in their practice. Remember that is likely one in every 10 they see with high blood pressure.

We recommend that the first thing you do is read Dr. Grim's article on the Evolution of PA in our files and take this to all your health care team.

Also read our files on Conn's stories and then give us yours in as much detail as you want. Especially what your blood tests for aldosterone and renin are and what is normal in the lab where they were done.

Fianlly we stress the role of diet in the management of PA and recommend you purchase and read the paperback book by Thomas Moore: The DASH Diet for Hypertesion. You will decrease your need for other BP meds by following this diet. However discuss this with your health care team first. If they have never heard of the DASH now it the time for them to do that.

Some causes of Conn's are inherited so give us as much of your family history (HX) of high blood pressure and low K as you know.

We recommend you learn to take your own BP with a device you listen to and take these to your health care team.

May your pressure be low!

CE Grim MD and Group

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