7253Positive HD gene test two years ago
- Jul 24, 2012I am 120 miles from the nearest support meetings. I have never
considered a support person on line until today. I just resently found
this site. I do not have anyone which I can discuss this horrible
situation with that understands first hand how I feel.
My father died with HD nine years ago. I am one of six children. One
brother was diagnosed two years ago, one sister with all the symptoms
but refuses to go to a doctor,and one brother with a negitive gene test.
The other siblings are very much in denial. I have cousins also at risk,
but none that will talk about IT.
I am 56 years old. My family tends to develope the symptoms in our late
fifties. I was my fathers caregiver for 12 years so I know first hand
what a dreadful time my family will have caring for me. I have a
wonderful and supportive husband and two children that love me dearly
but I would rather go to a early grave than for them to have to care for
I lost my job 16 monthes ago after working for 27 years as a LPN. I had
difficulty caring for my patients and eventually become a risk for the
company. After a hospitalization and multiple med changes, my
depression, anxiety and panic attacks are finally under control.
I would like to hear from you and learn your story.
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