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Group Description

Welcome to our support group for parents and famlies of children with Holoprosencephaly. HPE is a rare birth disorder caused by the failure of prosencephalon (the forebrain of the embryo) to properly divide, causing defects in the development of the face and in brain structure and function. Come join other parents, grandparents and caregivers who love children with this diagnosis. We're here for support, education and HoPE!

Also check out the following links:

http://familiesforhope.org/home.html (HPE parent organization)

http://www.stanford.edu/group/hpe/ (Carter Centers for Holoprosencephaly)

http://health.groups.yahoo.com/group/HPE-kidpics/ (Photo site-members only)

http://health.groups.yahoo.com/group/HPE-kidpics2/ (Photo site-members only)

Group Information

Group Settings

  • This is a restricted group.
  • Attachments are not permitted.
  • Members cannot hide email address.
  • Listed in Yahoo Groups directory.
  • Membership requires approval.
  • Messages are not moderated.
  • All members can post messages.

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