Re: [FH] SEVERE Obstructive HCM w/VERY POOR prognosis to *RESOLVED/Excellent* Miracle!
- We're all cheering for you!!! Great news!!!!!
----- Original Message -----
Sent: Friday, October 07, 2005 4:38 PM
Subject: [FH] SEVERE Obstructive HCM w/VERY POOR prognosis to
> Okay you guys,...I JUST got in the house after a long road trip today
> for Lillie's appt...Will tell the whole story later, but bottom line:
> what was called SEVERE OBSTRUCTIVE HCM with a prognosis of VERY POOR
> kept getting better bit by bit each visit. She just had her
> echocardiogram and he is now calling it: "HCM
> resolved/resolving?....EXCELLENT". More details later...I know I
> should be over the moon, but actually to me this news is the most scary
> news ever, because he wants me to start tapering off her meds and after
> a few months STOPPING. This really REALLY gives me anxiety, because
> her meds are what I feel got her to this point. More detaails later,
> but I guess we should celebrate...it's just hard when you went through
> the complete nightmare that was her heart failure and later scares.
> She has the best Dr there is, so I know I shouldn't worry,
> but....well.... EEEEEEEEEEEEEEEEK! More details tomorrow or later
- Thanks Everybody! I will give the full visit details this weekend,
school has been crazy this week...Lillie's meds started being reduced
yesterday...I'm so scared!