Re: Julia is really sick----------help please!
- --- In email@example.com, "klyngraham"
> Julia is on lamictal for siezures that started in '03 her dr. has
> slowly increased the medicine and she had no more seizures. The
> lamictal ,I was told keeps her seizure free for three years and in
> some cases forever. Around Christmas time she started falling
> she stood at the table,off her chair and even while crawling onthe
> floor.Like Michelle said, You know your daughter better than anyone. If
you ever feel something is not right, and your doctor is not doing
enough, Take her to the emergency room.
I almost lost my son because I listen to a doctor that was on call.
Kevin has severe lennox gastaut and spent almost a year and a half
in and out of the hospital. Kevins Neuro told me to just call his
office if Kevin needed to be hospitalized,I would call his office
and he would tell me to bring him to the hospital and they would
have a room ready for him, This help by pass the ER and all the
unnecessary test! Kevin spent most of that year and a half
One night I called and the doctor on call, (some doctor Kevin had
never seen, He was from India or some place) He apparently knew
about Kevin, He said Mrs. Arnold there is nothing we can do for your
son. I explained to him how bad he was, He insisted they have tried
everything and there was nothing left they could do.
This was at 11pm, I hung up the phone and cried. Kevin was on a
comforter seizing all night, My heart ached more that night then any
other night. At 8 am I called his Neuro and told him what happened,
I begged him to please help Kevin, He of course told me to bring
Kevin down and he would have a room ready for him, Kevin was
transfered to PICU is status, His EEG showed him having a 10-15 sec
break from seizing every 15-20 minutes.He stayed this way for three
I never did see or hear anymore about the (Indian Doctor)
When Kevin was in PICU, His Neuro came in all day long to check on
him, The nurses said they had never seen Kevins doctor do this with
another child. I will never forgive that Indian doctor for what he
said to me.
Kevins Neuro told me, "You know Kevin better then anyone, If you
think he needs to be here, Bring him in" Being 23 years old, and
naive, I thought Doctors were "Gods" Until that night.
Its hard when your young and have all this on you. How some of you
deal with two or three little angels..I have no idea.