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New to Angelman Syndrome

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  • miss_elayna
    Hello everybody My name is Kristina Beserra. My 4 1/2 year old daughter Elayna was just diagnosed with Angleman Syndrome. I am in a little shock for the last 3
    Message 1 of 4 , Jun 1, 2010
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      Hello everybody My name is Kristina Beserra. My 4 1/2 year old daughter Elayna was just diagnosed with Angleman Syndrome. I am in a little shock for the last 3 1/2 years the doctors had convinced me that she had Rett Syndrome so I am completely new to all of this. We live in Torrance Ca and she sees specialist @ Miller Childrens Hospital in Long Beach. ANy help or advice on what to do now would be gratly appreciated.
    • Stephanie Sullivan
      Hi Kristina.  My son is 4 and has AS.  We found out when he was almost 2.  It is a big shock at first, but you learn to just roll with it.  I haven t found
      Message 2 of 4 , Jun 3, 2010
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        Hi Kristina.  My son is 4 and has AS.  We found out when he was almost 2.  It is a big shock at first, but you learn to just roll with it.  I haven't found too many people on this group, just alot of spam.  However I am a real person so if you ever need to talk I am here.  Have a nice day.
        Stephanie

        --- On Tue, 6/1/10, miss_elayna <miss_elayna@...> wrote:


        From: miss_elayna <miss_elayna@...>
        Subject: [Families of Angelman Syndrome] New to Angelman Syndrome
        To: familiesofangelmansyndrome@yahoogroups.com
        Date: Tuesday, June 1, 2010, 8:35 PM


         



        Hello everybody My name is Kristina Beserra. My 4 1/2 year old daughter Elayna was just diagnosed with Angleman Syndrome. I am in a little shock for the last 3 1/2 years the doctors had convinced me that she had Rett Syndrome so I am completely new to all of this. We live in Torrance Ca and she sees specialist @ Miller Childrens Hospital in Long Beach. ANy help or advice on what to do now would be gratly appreciated.











        [Non-text portions of this message have been removed]
      • r sonstegard
        I am a real person too but this group has pretty much died completely. There is alot of good advice at the angelman listserve. Becky Ali--8  
        Message 3 of 4 , Jun 6, 2010
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          I am a real person too but this group has pretty much died completely. There is alot of good advice at the angelman listserve.


          Becky
          Ali--8
           


          <a href="http://www.snapdollars.com/index/lilacsandlac"><img src="http://www.snapdollars.com/images/banners/05.gif"; border="0"></a>



          ----- Original Message ----
          From: Stephanie Sullivan <sully_angel_boys@...>
          To: familiesofangelmansyndrome@yahoogroups.com
          Sent: Thu, June 3, 2010 8:57:39 PM
          Subject: Re: [Families of Angelman Syndrome] New to Angelman Syndrome

          Hi Kristina.  My son is 4 and has AS.  We found out when he was almost 2.  It is a big shock at first, but you learn to just roll with it.  I haven't found too many people on this group, just alot of spam.  However I am a real person so if you ever need to talk I am here.  Have a nice day.
          Stephanie

          --- On Tue, 6/1/10, miss_elayna <miss_elayna@...> wrote:


          From: miss_elayna <miss_elayna@...>
          Subject: [Families of Angelman Syndrome] New to Angelman Syndrome
          To: familiesofangelmansyndrome@yahoogroups.com
          Date: Tuesday, June 1, 2010, 8:35 PM


           



          Hello everybody My name is Kristina Beserra. My 4 1/2 year old daughter Elayna was just diagnosed with Angleman Syndrome. I am in a little shock for the last 3 1/2 years the doctors had convinced me that she had Rett Syndrome so I am completely new to all of this. We live in Torrance Ca and she sees specialist @ Miller Childrens Hospital in Long Beach. ANy help or advice on what to do now would be gratly appreciated.









               

          [Non-text portions of this message have been removed]



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          Yahoo! Groups Links
        • Peggy Ann
          Message 4 of 4 , Jun 17, 2010
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            --- In familiesofangelmansyndrome@yahoogroups.com, r sonstegard <rsonstegard@...> wrote:
            >
            > I am a real person too but this group has pretty much died completely. There is alot of good advice at the angelman listserve.
            >
            >
            > Becky
            > Ali--8
            >  
            >
            >
            > <a href="http://www.snapdollars.com/index/lilacsandlac"><img src="http://www.snapdollars.com/images/banners/05.gif"; border="0"></a>
            >
            >
            >
            > ----- Original Message ----
            > From: Stephanie Sullivan <sully_angel_boys@...>
            > To: familiesofangelmansyndrome@yahoogroups.com
            > Sent: Thu, June 3, 2010 8:57:39 PM
            > Subject: Re: [Families of Angelman Syndrome] New to Angelman Syndrome
            >
            > Hi Kristina.  My son is 4 and has AS.  We found out when he was almost 2.  It is a big shock at first, but you learn to just roll with it.  I haven't found too many people on this group, just alot of spam.  However I am a real person so if you ever need to talk I am here.  Have a nice day.
            > Stephanie
            >
            > --- On Tue, 6/1/10, miss_elayna <miss_elayna@...> wrote:
            >
            >
            > From: miss_elayna <miss_elayna@...>
            > Subject: [Families of Angelman Syndrome] New to Angelman Syndrome
            > To: familiesofangelmansyndrome@yahoogroups.com
            > Date: Tuesday, June 1, 2010, 8:35 PM
            >
            >
            >  
            >
            >
            >
            > Hello everybody My name is Kristina Beserra. My 4 1/2 year old daughter Elayna was just diagnosed with Angleman Syndrome. I am in a little shock for the last 3 1/2 years the doctors had convinced me that she had Rett Syndrome so I am completely new to all of this. We live in Torrance Ca and she sees specialist @ Miller Childrens Hospital in Long Beach. ANy help or advice on what to do now would be gratly appreciated.
            >
            >
            >
            >
            >
            >
            >
            >
            >
            >      
            >
            > [Non-text portions of this message have been removed]
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            > ------------------------------------
            >
            > Yahoo! Groups Links
            >
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