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Re: [Families of Angelman Syndrome] child care-discrimination/Robbie

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  • bobbie toole
    Thanks for your reply, I have checked into respite care for the boys and the nearest care is over an hour and a half away. Everyone I have checked
    Message 1 of 13 , Aug 1 8:23 AM
      Thanks for your reply, I have checked into respite care for the boys and the nearest care is over an hour and a half away. Everyone I have checked with-individual-I have told them I would help them to get certified so they would make more than the usual but so far no takers. There is a new daycare just about to open in town-it is run by a nurse-so I'm trying to catch up with them and see if they will take the boys. They don't have a feeding tube, but Kye has to be feed and watched that he doesn't choke. Jase is so hyper he is into everthing all the time. Thanks again, Bobbie

      Robbie Montgomery <rmontgomery@...> wrote: Hi,

      Yes, I have had a daycare say that they couldn;t meet my angels needs.
      This was before we even knew of her diagnosis. She had a feeding tube and
      needed lots of care. I was dissappointed. Respite care is in place for
      kids like ours. I strongly encourage you to get respite care. There are
      two kinds in our state. There is the "state respite" which is based on
      family income and then there is the medicaid waiver. Once a child
      qualifies for this federal program, so much money is alloted to help care
      for the needs of the children. The providers are paid much better than a
      regular daycare and they have trainings and standards that they must
      adhere too. Also, if you find someone to take care of the kids they can
      become certified as a care provider and be paid better than a daycare
      specialist would.

      Take care and good luck.

      Robbie Montgomery, M.S, SLP-CCC
      Speech-Language Pathologist






      ---------------------------------
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      [Non-text portions of this message have been removed]
    • SUSAN WINFREY
      You know I feel so fortunate for myself that my life has worked out like it has, regarding my career choice. I have a home daycare, and have for 6 years. I
      Message 2 of 13 , Aug 1 8:34 AM
        You know I feel so fortunate for myself that my life has worked out like it has, regarding my career choice. I have a home daycare, and have for 6 years. I have a daughter who's 8 and one who is 5 and my son Ian (who has Angelman's) is 19 months. I've turned my garage into the daycare room. I didn't want to put any of my children in daycare, especially couldn't imagine trusting anyone with Ian. I would absolutely flip if anyone treated Ian badly. I want to cry for you!!!! I am going to Cabo for 4 days this week-end (husband is in sales & wins these "expense paid" trips). Chloe, the 5 year old is going to Nana's & Madison, the 8 year old is staying home with Ian and a good friend of mine who works with me in the daycare and knows Ian even better than nana, which is another subject.
        As far as me taking a special needs child, it would all depend on the situation, theirs and mine. Another words....do I think I think I have enough staff, resources, etc. to do it? I've taken children who were ADHD ? and some who really lack discipline and structure at home and if I can't do it then I am open enough to communicate it, I would never take on something that would totally stress me. I have a huge heart and love all of my children and treat them all as my own and the parents love me it's like one big happy family. If there is anything I can do let me know.

        Susan, mom to 19 month old Ian

        Maria <mleonguerrero06@...> wrote:
        I also had the same problem with my son CobyJake when he was 5yrs
        old. The DayCare he attended part-time after school only accepted
        him because the Director was a close friend of Coby's paternal aunt.
        But she told me that if she didn't know me, she wouldn't have
        accepted coby. He went for almost a school year, but one day i
        arrived unexpectedly and heard the provider yelling, and yanking
        coby's arm to force him to wash his hands. Then pulled him and
        plump him to sit still in the corner, I burt into the room, and gave
        them a piece of my mind and never took Coby back there. Until this
        day i still don't speak to the Directer, and when there's a family
        gathering where i know the (aunts friend) is going to be present i
        don't attend. Everyone in the family knows what happened, and she
        keeps reasuring me that action was taken against the employee, but i
        still will never forgive them. If you saw the helpless look on my
        son's face, tears streaming down his checks it would just tear your
        heart out. I still feel guilty for not reconizing the signs and his
        siezures seemed to be stronger during the week. I know if coby knew
        signing or talk he would have told me... but i had to find out the
        hard way. Its been two years since, and he doesn't have much
        seizures, unless he had a hard day at school. And i now see the
        signs. Life is really hard and i sometimes wish i had respite care
        for him, but im not sure we qualify here on Guam.
        Take Care and sorry so long. p.s. I never tried any other day care
        since.
        Maria w/ angel cobyjake 7

        --- In familiesofangelmansyndrome@yahoogroups.com, "Robbie
        Montgomery" <rmontgomery@...> wrote:
        >
        > Hi,
        >
        > Yes, I have had a daycare say that they couldn;t meet my angels
        needs.
        > This was before we even knew of her diagnosis. She had a feeding
        tube and
        > needed lots of care. I was dissappointed. Respite care is in place
        for
        > kids like ours. I strongly encourage you to get respite care.
        There are
        > two kinds in our state. There is the "state respite" which is
        based on
        > family income and then there is the medicaid waiver. Once a child
        > qualifies for this federal program, so much money is alloted to
        help care
        > for the needs of the children. The providers are paid much better
        than a
        > regular daycare and they have trainings and standards that they
        must
        > adhere too. Also, if you find someone to take care of the kids
        they can
        > become certified as a care provider and be paid better than a
        daycare
        > specialist would.
        >
        > Take care and good luck.
        >
        > Robbie Montgomery, M.S, SLP-CCC
        > Speech-Language Pathologist
        >






        [Non-text portions of this message have been removed]
      • Alpha & Omega Christian School
        What state any city are you in that, as I said , I am the Pastor and Director of Alpha & Omega Christian Ministries , which also has a school and I would like
        Message 3 of 13 , Aug 1 9:05 AM
          What state any city are you in that, as I said , I am the Pastor and Director of Alpha & Omega Christian Ministries , which also has a school and I would like to look a the DHR, site for your state, just to see if there's any loop-holes, What age is your child , in the state of Alabama , a child with special needs can receive public school services as early as 3yrs of age. And if the local public school can't meet the child's needs, they will pay for a private setting or a home setting , I would be more than glad to research this for you.

          SUSAN WINFREY <okswinfrey@...> wrote: You know I feel so fortunate for myself that my life has worked out like it has, regarding my career choice. I have a home daycare, and have for 6 years. I have a daughter who's 8 and one who is 5 and my son Ian (who has Angelman's) is 19 months. I've turned my garage into the daycare room. I didn't want to put any of my children in daycare, especially couldn't imagine trusting anyone with Ian. I would absolutely flip if anyone treated Ian badly. I want to cry for you!!!! I am going to Cabo for 4 days this week-end (husband is in sales & wins these "expense paid" trips). Chloe, the 5 year old is going to Nana's & Madison, the 8 year old is staying home with Ian and a good friend of mine who works with me in the daycare and knows Ian even better than nana, which is another subject.
          As far as me taking a special needs child, it would all depend on the situation, theirs and mine. Another words....do I think I think I have enough staff, resources, etc. to do it? I've taken children who were ADHD ? and some who really lack discipline and structure at home and if I can't do it then I am open enough to communicate it, I would never take on something that would totally stress me. I have a huge heart and love all of my children and treat them all as my own and the parents love me it's like one big happy family. If there is anything I can do let me know.

          Susan, mom to 19 month old Ian

          Maria <mleonguerrero06@...> wrote:
          I also had the same problem with my son CobyJake when he was 5yrs
          old. The DayCare he attended part-time after school only accepted
          him because the Director was a close friend of Coby's paternal aunt.
          But she told me that if she didn't know me, she wouldn't have
          accepted coby. He went for almost a school year, but one day i
          arrived unexpectedly and heard the provider yelling, and yanking
          coby's arm to force him to wash his hands. Then pulled him and
          plump him to sit still in the corner, I burt into the room, and gave
          them a piece of my mind and never took Coby back there. Until this
          day i still don't speak to the Directer, and when there's a family
          gathering where i know the (aunts friend) is going to be present i
          don't attend. Everyone in the family knows what happened, and she
          keeps reasuring me that action was taken against the employee, but i
          still will never forgive them. If you saw the helpless look on my
          son's face, tears streaming down his checks it would just tear your
          heart out. I still feel guilty for not reconizing the signs and his
          siezures seemed to be stronger during the week. I know if coby knew
          signing or talk he would have told me... but i had to find out the
          hard way. Its been two years since, and he doesn't have much
          seizures, unless he had a hard day at school. And i now see the
          signs. Life is really hard and i sometimes wish i had respite care
          for him, but im not sure we qualify here on Guam.
          Take Care and sorry so long. p.s. I never tried any other day care
          since.
          Maria w/ angel cobyjake 7

          --- In familiesofangelmansyndrome@yahoogroups.com, "Robbie
          Montgomery" <rmontgomery@...> wrote:
          >
          > Hi,
          >
          > Yes, I have had a daycare say that they couldn;t meet my angels
          needs.
          > This was before we even knew of her diagnosis. She had a feeding
          tube and
          > needed lots of care. I was dissappointed. Respite care is in place
          for
          > kids like ours. I strongly encourage you to get respite care.
          There are
          > two kinds in our state. There is the "state respite" which is
          based on
          > family income and then there is the medicaid waiver. Once a child
          > qualifies for this federal program, so much money is alloted to
          help care
          > for the needs of the children. The providers are paid much better
          than a
          > regular daycare and they have trainings and standards that they
          must
          > adhere too. Also, if you find someone to take care of the kids
          they can
          > become certified as a care provider and be paid better than a
          daycare
          > specialist would.
          >
          > Take care and good luck.
          >
          > Robbie Montgomery, M.S, SLP-CCC
          > Speech-Language Pathologist
          >

          [Non-text portions of this message have been removed]






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        • Carol
          Washington State has similar provisions. Carol _____ From: familiesofangelmansyndrome@yahoogroups.com [mailto:familiesofangelmansyndrome@yahoogroups.com] On
          Message 4 of 13 , Aug 1 9:13 AM
            Washington State has similar provisions.

            Carol

            _____

            From: familiesofangelmansyndrome@yahoogroups.com
            [mailto:familiesofangelmansyndrome@yahoogroups.com] On Behalf Of Alpha &
            Omega Christian School
            Sent: Tuesday, August 01, 2006 9:06 AM
            To: familiesofangelmansyndrome@yahoogroups.com
            Subject: Re: [Families of Angelman Syndrome] child care-discrimination



            What state any city are you in that, as I said , I am the Pastor and
            Director of Alpha & Omega Christian Ministries , which also has a school and
            I would like to look a the DHR, site for your state, just to see if there's
            any loop-holes, What age is your child , in the state of Alabama , a child
            with special needs can receive public school services as early as 3yrs of
            age. And if the local public school can't meet the child's needs, they will
            pay for a private setting or a home setting , I would be more than glad to
            research this for you.

            SUSAN WINFREY <okswinfrey@prodigy. <mailto:okswinfrey%40prodigy.net> net>
            wrote: You know I feel so fortunate for myself that my life has worked out
            like it has, regarding my career choice. I have a home daycare, and have for
            6 years. I have a daughter who's 8 and one who is 5 and my son Ian (who has
            Angelman's) is 19 months. I've turned my garage into the daycare room. I
            didn't want to put any of my children in daycare, especially couldn't
            imagine trusting anyone with Ian. I would absolutely flip if anyone treated
            Ian badly. I want to cry for you!!!! I am going to Cabo for 4 days this
            week-end (husband is in sales & wins these "expense paid" trips). Chloe, the
            5 year old is going to Nana's & Madison, the 8 year old is staying home with
            Ian and a good friend of mine who works with me in the daycare and knows Ian
            even better than nana, which is another subject.
            As far as me taking a special needs child, it would all depend on the
            situation, theirs and mine. Another words....do I think I think I have
            enough staff, resources, etc. to do it? I've taken children who were ADHD ?
            and some who really lack discipline and structure at home and if I can't do
            it then I am open enough to communicate it, I would never take on something
            that would totally stress me. I have a huge heart and love all of my
            children and treat them all as my own and the parents love me it's like one
            big happy family. If there is anything I can do let me know.

            Susan, mom to 19 month old Ian

            Maria <mleonguerrero06@ <mailto:mleonguerrero06%40yahoo.com> yahoo.com>
            wrote:
            I also had the same problem with my son CobyJake when he was 5yrs
            old. The DayCare he attended part-time after school only accepted
            him because the Director was a close friend of Coby's paternal aunt.
            But she told me that if she didn't know me, she wouldn't have
            accepted coby. He went for almost a school year, but one day i
            arrived unexpectedly and heard the provider yelling, and yanking
            coby's arm to force him to wash his hands. Then pulled him and
            plump him to sit still in the corner, I burt into the room, and gave
            them a piece of my mind and never took Coby back there. Until this
            day i still don't speak to the Directer, and when there's a family
            gathering where i know the (aunts friend) is going to be present i
            don't attend. Everyone in the family knows what happened, and she
            keeps reasuring me that action was taken against the employee, but i
            still will never forgive them. If you saw the helpless look on my
            son's face, tears streaming down his checks it would just tear your
            heart out. I still feel guilty for not reconizing the signs and his
            siezures seemed to be stronger during the week. I know if coby knew
            signing or talk he would have told me... but i had to find out the
            hard way. Its been two years since, and he doesn't have much
            seizures, unless he had a hard day at school. And i now see the
            signs. Life is really hard and i sometimes wish i had respite care
            for him, but im not sure we qualify here on Guam.
            Take Care and sorry so long. p.s. I never tried any other day care
            since.
            Maria w/ angel cobyjake 7

            --- In familiesofangelmans
            <mailto:familiesofangelmansyndrome%40yahoogroups.com>
            yndrome@yahoogroups.com, "Robbie
            Montgomery" <rmontgomery@...> wrote:
            >
            > Hi,
            >
            > Yes, I have had a daycare say that they couldn;t meet my angels
            needs.
            > This was before we even knew of her diagnosis. She had a feeding
            tube and
            > needed lots of care. I was dissappointed. Respite care is in place
            for
            > kids like ours. I strongly encourage you to get respite care.
            There are
            > two kinds in our state. There is the "state respite" which is
            based on
            > family income and then there is the medicaid waiver. Once a child
            > qualifies for this federal program, so much money is alloted to
            help care
            > for the needs of the children. The providers are paid much better
            than a
            > regular daycare and they have trainings and standards that they
            must
            > adhere too. Also, if you find someone to take care of the kids
            they can
            > become certified as a care provider and be paid better than a
            daycare
            > specialist would.
            >
            > Take care and good luck.
            >
            > Robbie Montgomery, M.S, SLP-CCC
            > Speech-Language Pathologist
            >

            [Non-text portions of this message have been removed]


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            Get on board. You're invited to try the new Yahoo! Mail Beta.

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          • bobbie toole
            We are in Johnson, Kansas, this is a small town in the very south west part of the state. The boys ages are- Kye is 4 yrs old, and Jase will be 3yrs old the
            Message 5 of 13 , Aug 1 9:55 AM
              We are in Johnson, Kansas, this is a small town in the very south west part of the state. The boys ages are- Kye is 4 yrs old, and Jase will be 3yrs old the end of the month. We have the boys in early childhood development, which comes to the house and works with the boys and Kye will start to Pre-K at the local school this fall. But that doesn't help with the daycare we need so desperately, there are no respit care givers in this area either. Anything you can come up with would be a help. Thankyou, Bobbie

              Alpha & Omega Christian School <debsgold2@...> wrote:
              What state any city are you in that, as I said , I am the Pastor and Director of Alpha & Omega Christian Ministries , which also has a school and I would like to look a the DHR, site for your state, just to see if there's any loop-holes, What age is your child , in the state of Alabama , a child with special needs can receive public school services as early as 3yrs of age. And if the local public school can't meet the child's needs, they will pay for a private setting or a home setting , I would be more than glad to research this for you.

              SUSAN WINFREY <okswinfrey@...> wrote: You know I feel so fortunate for myself that my life has worked out like it has, regarding my career choice. I have a home daycare, and have for 6 years. I have a daughter who's 8 and one who is 5 and my son Ian (who has Angelman's) is 19 months. I've turned my garage into the daycare room. I didn't want to put any of my children in daycare, especially couldn't imagine trusting anyone with Ian. I would absolutely flip if anyone treated Ian badly. I want to cry for you!!!! I am going to Cabo for 4 days this week-end (husband is in sales & wins these "expense paid" trips). Chloe, the 5 year old is going to Nana's & Madison, the 8 year old is staying home with Ian and a good friend of mine who works with me in the daycare and knows Ian even better than nana, which is another subject.
              As far as me taking a special needs child, it would all depend on the situation, theirs and mine. Another words....do I think I think I have enough staff, resources, etc. to do it? I've taken children who were ADHD ? and some who really lack discipline and structure at home and if I can't do it then I am open enough to communicate it, I would never take on something that would totally stress me. I have a huge heart and love all of my children and treat them all as my own and the parents love me it's like one big happy family. If there is anything I can do let me know.

              Susan, mom to 19 month old Ian

              Maria <mleonguerrero06@...> wrote:
              I also had the same problem with my son CobyJake when he was 5yrs
              old. The DayCare he attended part-time after school only accepted
              him because the Director was a close friend of Coby's paternal aunt.
              But she told me that if she didn't know me, she wouldn't have
              accepted coby. He went for almost a school year, but one day i
              arrived unexpectedly and heard the provider yelling, and yanking
              coby's arm to force him to wash his hands. Then pulled him and
              plump him to sit still in the corner, I burt into the room, and gave
              them a piece of my mind and never took Coby back there. Until this
              day i still don't speak to the Directer, and when there's a family
              gathering where i know the (aunts friend) is going to be present i
              don't attend. Everyone in the family knows what happened, and she
              keeps reasuring me that action was taken against the employee, but i
              still will never forgive them. If you saw the helpless look on my
              son's face, tears streaming down his checks it would just tear your
              heart out. I still feel guilty for not reconizing the signs and his
              siezures seemed to be stronger during the week. I know if coby knew
              signing or talk he would have told me... but i had to find out the
              hard way. Its been two years since, and he doesn't have much
              seizures, unless he had a hard day at school. And i now see the
              signs. Life is really hard and i sometimes wish i had respite care
              for him, but im not sure we qualify here on Guam.
              Take Care and sorry so long. p.s. I never tried any other day care
              since.
              Maria w/ angel cobyjake 7

              --- In familiesofangelmansyndrome@yahoogroups.com, "Robbie
              Montgomery" <rmontgomery@...> wrote:
              >
              > Hi,
              >
              > Yes, I have had a daycare say that they couldn;t meet my angels
              needs.
              > This was before we even knew of her diagnosis. She had a feeding
              tube and
              > needed lots of care. I was dissappointed. Respite care is in place
              for
              > kids like ours. I strongly encourage you to get respite care.
              There are
              > two kinds in our state. There is the "state respite" which is
              based on
              > family income and then there is the medicaid waiver. Once a child
              > qualifies for this federal program, so much money is alloted to
              help care
              > for the needs of the children. The providers are paid much better
              than a
              > regular daycare and they have trainings and standards that they
              must
              > adhere too. Also, if you find someone to take care of the kids
              they can
              > become certified as a care provider and be paid better than a
              daycare
              > specialist would.
              >
              > Take care and good luck.
              >
              > Robbie Montgomery, M.S, SLP-CCC
              > Speech-Language Pathologist
              >

              [Non-text portions of this message have been removed]


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            • Thelma Jones
              Is there a Visiting Nurse s Association around your area ? Like that visit elderly people? Maybe they could help. Tammy ...
              Message 6 of 13 , Aug 1 11:03 AM
                Is there a Visiting Nurse's Association around your area ? Like that visit
                elderly people? Maybe they could help.
                Tammy


                >From: bobbie toole <sandylot_2@...>
                >Reply-To: familiesofangelmansyndrome@yahoogroups.com
                >To: familiesofangelmansyndrome@yahoogroups.com
                >Subject: Re: [Families of Angelman Syndrome] child
                >care-discrimination/Alpha & omega
                >Date: Tue, 1 Aug 2006 09:55:46 -0700 (PDT)
                >
                >We are in Johnson, Kansas, this is a small town in the very south west
                >part of the state. The boys ages are- Kye is 4 yrs old, and Jase will be
                >3yrs old the end of the month. We have the boys in early childhood
                >development, which comes to the house and works with the boys and Kye will
                >start to Pre-K at the local school this fall. But that doesn't help with
                >the daycare we need so desperately, there are no respit care givers in this
                >area either. Anything you can come up with would be a help. Thankyou,
                >Bobbie
                >
                >Alpha & Omega Christian School <debsgold2@...> wrote:
                > What state any city are you in that, as I said , I am the Pastor
                >and Director of Alpha & Omega Christian Ministries , which also has a
                >school and I would like to look a the DHR, site for your state, just to see
                >if there's any loop-holes, What age is your child , in the state of Alabama
                >, a child with special needs can receive public school services as early as
                >3yrs of age. And if the local public school can't meet the child's needs,
                >they will pay for a private setting or a home setting , I would be more
                >than glad to research this for you.
                >
                >SUSAN WINFREY <okswinfrey@...> wrote: You know I feel so fortunate
                >for myself that my life has worked out like it has, regarding my career
                >choice. I have a home daycare, and have for 6 years. I have a daughter
                >who's 8 and one who is 5 and my son Ian (who has Angelman's) is 19 months.
                >I've turned my garage into the daycare room. I didn't want to put any of my
                >children in daycare, especially couldn't imagine trusting anyone with Ian.
                >I would absolutely flip if anyone treated Ian badly. I want to cry for
                >you!!!! I am going to Cabo for 4 days this week-end (husband is in sales &
                >wins these "expense paid" trips). Chloe, the 5 year old is going to Nana's
                >& Madison, the 8 year old is staying home with Ian and a good friend of
                >mine who works with me in the daycare and knows Ian even better than nana,
                >which is another subject.
                >As far as me taking a special needs child, it would all depend on the
                >situation, theirs and mine. Another words....do I think I think I have
                >enough staff, resources, etc. to do it? I've taken children who were ADHD ?
                >and some who really lack discipline and structure at home and if I can't do
                >it then I am open enough to communicate it, I would never take on something
                >that would totally stress me. I have a huge heart and love all of my
                >children and treat them all as my own and the parents love me it's like one
                >big happy family. If there is anything I can do let me know.
                >
                >Susan, mom to 19 month old Ian
                >
                >Maria <mleonguerrero06@...> wrote:
                >I also had the same problem with my son CobyJake when he was 5yrs
                >old. The DayCare he attended part-time after school only accepted
                >him because the Director was a close friend of Coby's paternal aunt.
                >But she told me that if she didn't know me, she wouldn't have
                >accepted coby. He went for almost a school year, but one day i
                >arrived unexpectedly and heard the provider yelling, and yanking
                >coby's arm to force him to wash his hands. Then pulled him and
                >plump him to sit still in the corner, I burt into the room, and gave
                >them a piece of my mind and never took Coby back there. Until this
                >day i still don't speak to the Directer, and when there's a family
                >gathering where i know the (aunts friend) is going to be present i
                >don't attend. Everyone in the family knows what happened, and she
                >keeps reasuring me that action was taken against the employee, but i
                >still will never forgive them. If you saw the helpless look on my
                >son's face, tears streaming down his checks it would just tear your
                >heart out. I still feel guilty for not reconizing the signs and his
                >siezures seemed to be stronger during the week. I know if coby knew
                >signing or talk he would have told me... but i had to find out the
                >hard way. Its been two years since, and he doesn't have much
                >seizures, unless he had a hard day at school. And i now see the
                >signs. Life is really hard and i sometimes wish i had respite care
                >for him, but im not sure we qualify here on Guam.
                >Take Care and sorry so long. p.s. I never tried any other day care
                >since.
                >Maria w/ angel cobyjake 7
                >
                >--- In familiesofangelmansyndrome@yahoogroups.com, "Robbie
                >Montgomery" <rmontgomery@...> wrote:
                > >
                > > Hi,
                > >
                > > Yes, I have had a daycare say that they couldn;t meet my angels
                >needs.
                > > This was before we even knew of her diagnosis. She had a feeding
                >tube and
                > > needed lots of care. I was dissappointed. Respite care is in place
                >for
                > > kids like ours. I strongly encourage you to get respite care.
                >There are
                > > two kinds in our state. There is the "state respite" which is
                >based on
                > > family income and then there is the medicaid waiver. Once a child
                > > qualifies for this federal program, so much money is alloted to
                >help care
                > > for the needs of the children. The providers are paid much better
                >than a
                > > regular daycare and they have trainings and standards that they
                >must
                > > adhere too. Also, if you find someone to take care of the kids
                >they can
                > > become certified as a care provider and be paid better than a
                >daycare
                > > specialist would.
                > >
                > > Take care and good luck.
                > >
                > > Robbie Montgomery, M.S, SLP-CCC
                > > Speech-Language Pathologist
                > >
                >
                >[Non-text portions of this message have been removed]
                >
                >
                >---------------------------------
                >Do you Yahoo!?
                >Get on board. You're invited to try the new Yahoo! Mail Beta.
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                >
                >
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              • bobbie toole
                Not in our area. Thanks for the thought, Bobbie Thelma Jones wrote: Is there a Visiting Nurse s Association around your area ? Like
                Message 7 of 13 , Aug 1 11:38 AM
                  Not in our area. Thanks for the thought, Bobbie

                  Thelma Jones <thelma443@...> wrote: Is there a Visiting Nurse's Association around your area ? Like that visit
                  elderly people? Maybe they could help.
                  Tammy


                  >From: bobbie toole
                  >Reply-To: familiesofangelmansyndrome@yahoogroups.com
                  >To: familiesofangelmansyndrome@yahoogroups.com
                  >Subject: Re: [Families of Angelman Syndrome] child
                  >care-discrimination/Alpha & omega
                  >Date: Tue, 1 Aug 2006 09:55:46 -0700 (PDT)
                  >
                  >We are in Johnson, Kansas, this is a small town in the very south west
                  >part of the state. The boys ages are- Kye is 4 yrs old, and Jase will be
                  >3yrs old the end of the month. We have the boys in early childhood
                  >development, which comes to the house and works with the boys and Kye will
                  >start to Pre-K at the local school this fall. But that doesn't help with
                  >the daycare we need so desperately, there are no respit care givers in this
                  >area either. Anything you can come up with would be a help. Thankyou,
                  >Bobbie
                  >
                  >Alpha & Omega Christian School wrote:
                  > What state any city are you in that, as I said , I am the Pastor
                  >and Director of Alpha & Omega Christian Ministries , which also has a
                  >school and I would like to look a the DHR, site for your state, just to see
                  >if there's any loop-holes, What age is your child , in the state of Alabama
                  >, a child with special needs can receive public school services as early as
                  >3yrs of age. And if the local public school can't meet the child's needs,
                  >they will pay for a private setting or a home setting , I would be more
                  >than glad to research this for you.
                  >
                  >SUSAN WINFREY wrote: You know I feel so fortunate
                  >for myself that my life has worked out like it has, regarding my career
                  >choice. I have a home daycare, and have for 6 years. I have a daughter
                  >who's 8 and one who is 5 and my son Ian (who has Angelman's) is 19 months.
                  >I've turned my garage into the daycare room. I didn't want to put any of my
                  >children in daycare, especially couldn't imagine trusting anyone with Ian.
                  >I would absolutely flip if anyone treated Ian badly. I want to cry for
                  >you!!!! I am going to Cabo for 4 days this week-end (husband is in sales &
                  >wins these "expense paid" trips). Chloe, the 5 year old is going to Nana's
                  >& Madison, the 8 year old is staying home with Ian and a good friend of
                  >mine who works with me in the daycare and knows Ian even better than nana,
                  >which is another subject.
                  >As far as me taking a special needs child, it would all depend on the
                  >situation, theirs and mine. Another words....do I think I think I have
                  >enough staff, resources, etc. to do it? I've taken children who were ADHD ?
                  >and some who really lack discipline and structure at home and if I can't do
                  >it then I am open enough to communicate it, I would never take on something
                  >that would totally stress me. I have a huge heart and love all of my
                  >children and treat them all as my own and the parents love me it's like one
                  >big happy family. If there is anything I can do let me know.
                  >
                  >Susan, mom to 19 month old Ian
                  >
                  >Maria wrote:
                  >I also had the same problem with my son CobyJake when he was 5yrs
                  >old. The DayCare he attended part-time after school only accepted
                  >him because the Director was a close friend of Coby's paternal aunt.
                  >But she told me that if she didn't know me, she wouldn't have
                  >accepted coby. He went for almost a school year, but one day i
                  >arrived unexpectedly and heard the provider yelling, and yanking
                  >coby's arm to force him to wash his hands. Then pulled him and
                  >plump him to sit still in the corner, I burt into the room, and gave
                  >them a piece of my mind and never took Coby back there. Until this
                  >day i still don't speak to the Directer, and when there's a family
                  >gathering where i know the (aunts friend) is going to be present i
                  >don't attend. Everyone in the family knows what happened, and she
                  >keeps reasuring me that action was taken against the employee, but i
                  >still will never forgive them. If you saw the helpless look on my
                  >son's face, tears streaming down his checks it would just tear your
                  >heart out. I still feel guilty for not reconizing the signs and his
                  >siezures seemed to be stronger during the week. I know if coby knew
                  >signing or talk he would have told me... but i had to find out the
                  >hard way. Its been two years since, and he doesn't have much
                  >seizures, unless he had a hard day at school. And i now see the
                  >signs. Life is really hard and i sometimes wish i had respite care
                  >for him, but im not sure we qualify here on Guam.
                  >Take Care and sorry so long. p.s. I never tried any other day care
                  >since.
                  >Maria w/ angel cobyjake 7
                  >
                  >--- In familiesofangelmansyndrome@yahoogroups.com, "Robbie
                  >Montgomery" wrote:
                  > >
                  > > Hi,
                  > >
                  > > Yes, I have had a daycare say that they couldn;t meet my angels
                  >needs.
                  > > This was before we even knew of her diagnosis. She had a feeding
                  >tube and
                  > > needed lots of care. I was dissappointed. Respite care is in place
                  >for
                  > > kids like ours. I strongly encourage you to get respite care.
                  >There are
                  > > two kinds in our state. There is the "state respite" which is
                  >based on
                  > > family income and then there is the medicaid waiver. Once a child
                  > > qualifies for this federal program, so much money is alloted to
                  >help care
                  > > for the needs of the children. The providers are paid much better
                  >than a
                  > > regular daycare and they have trainings and standards that they
                  >must
                  > > adhere too. Also, if you find someone to take care of the kids
                  >they can
                  > > become certified as a care provider and be paid better than a
                  >daycare
                  > > specialist would.
                  > >
                  > > Take care and good luck.
                  > >
                  > > Robbie Montgomery, M.S, SLP-CCC
                  > > Speech-Language Pathologist
                  > >
                  >
                  >[Non-text portions of this message have been removed]
                  >
                  >
                  >---------------------------------
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                  >Get on board. You're invited to try the new Yahoo! Mail Beta.
                  >
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                  >
                  >
                  >
                  >
                  >
                  >
                  >---------------------------------
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                  >
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                  >

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                • justannae kirby
                  Time to break some bad news to ya....your Angel is going to be descriminated alot....some from the uneducated, some from ignorance, some from fear, and some
                  Message 8 of 13 , Aug 16 7:08 PM
                    Time to break some bad news to ya....your Angel is going to be
                    descriminated alot....some from the uneducated, some from ignorance,
                    some from fear, and some out of pure meanness.
                    Junior is 22 now...back when he was about 6 or 7 we signed him up for
                    Rotary Camp...it's a camp for special needs kids....we got him there
                    about 4:00 on a Sunday afternoon....at 8:00 the next morning the camp
                    director called and said Junior needed to be sent home, as they
                    weren't going to put full supervision on any of the kids...he had to
                    go. Our daughter had gone to the same camp for years and it was
                    GREAT...we were appalled that Junior would be treated this
                    way....after we got over being mad.....we got resourceful and created
                    ways to keep him occuppied for the summer....
                    Just remember...what doesn't kill you, makes you stronger!
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