Re: What are the active groups? -- Kathy, thx for response
- Hi Kathy, thanks for responding.
I *was* talking about getting hooked up with groups on both the
internet and in-person. When I did a search for Angelman Syndrome
internet groups under Yahoo Groups, I got this group and a few
others. One of those was a DC area group but it was invitation
only. I've no idea how to contact them. I was thinking I might try
through the Maryland contact from the Angelman Syndrome Foundation.
Also, I'll try to get on the Foundation's listserve as you
suggested. I believe I can do it by contacting info@...,
right? That should get us started in terms of support.
Right now we're kind of reeling but that's how we felt when he was
diagnosed with CP too and it eventually subsided. We were really
looking forward to hearing him talk in the next year or so and we're
going to have to readjust a lot of expectations as all AS parents
have to do. Ah well, we're just at the beginning of this journey and
Nico, of course, is as happy as ever. Thank God for the little guy,
he's such a blessing. Thanks again, --Nadereh
--- In firstname.lastname@example.org, Kathy Leonard
> Hi,talking about on the internet? I've never heard of a group like the
> By active group it sounds like you mean in person? Or are you
one that is in DC that is invitation only. You can either call the
Angelman Syndrome Foundation and ask, or I would be more than happy
to check into it for you. Are you looking for local support? There
is the listserve via the internet that is very active that you can
get to off the main ASF page.
> Let me know and i'll hook you up with someone.
> Mandy 11yrs. ube3a, Angie 6yrs. ube3a, and rocky 2yrs ube3a
> Warren, MI
> Do you Yahoo!?
> The New Yahoo! Shopping - with improved product search
> [Non-text portions of this message have been removed]