Re: new member
- Hi everyone....just a quick note....when Matt was just months old he
was not gaining weight either....the doctor had us put Karo syrup in
his food/drink...it's been a while, but as I recall it was like a
tablespoonful with each meal...either in the cereal or drink....check
with your doctor before trying this, but it came from a doc that has
dealt with Angelman kids before. Worked for Matt and he started
gaining regularly...not as fast as other kids, but at least it was
Take care and don't forget to check with your doc first...
Wendy mother of Matthew, 10, del+
- hi everyone i,m sarah .Ihave a 2 1/2 year old angel declan. we live
in the uk .declan is the usual little angel he loves life laughing
his way through the day. he can,t walk yet .and he has no speech i
cant say he has,nt got a voice because most can hear him mile away.
he still has uncontrolled fits usually 30-50 every 2 weeks.i would
love to know if anyone is using the picture cards for communication
and is it working. declan just likes it eat the cards so we,re not
making much procress. bye for now my angels calling. p.s he,s
- Hello Everyone,
New member here. We're the Marx family from Oregon, Mike,Robin Kelly
and our Angel Erich who is 11 now.
In 1997 We got a diagnosis from Dr. Magenis at OHSU in Portland. The
FISH test was negative for a deletion.
After attending the recent conference in Anaheim we have found there
are new tests available but we are debating on whether they need to be
done now. After finally meeting other people and families with AS we
have no doubt Erich is an Angel.
I tell you though, it feels so good being connected to a group now and
talking with other people that are dealing with the same day to day
life as us. We got it good!
Thanks for listening everyone.
- YOUR CHILD IS NORMAL.
Bet you never expected to see that, did ya?
Ok, so the outside world sees our kids as being different from theirs.
But, here in our world...the Land of the Angels...our kids are very
- We Understand Our Son is 5 and has A/S we are by far not a "professional" , but been through allot. E-Mail us anytime. Hope u Like that attachment.
bowheads4ever <bowheads4ever@...> wrote: my wife and i just recently found out that our 2yr old son seth has
as. we are just trying to talk to others in the same situation.
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- Would love to talk to other parents with children whom have angelman
syndrome. My son Michael was diagnosed in 2001. He will be 6 in
- hi everyone,
I'm Andrea and I have a son 20 months old who has angelman syndrome
I'm Italian and my english is not very good.
- Welcome Andrea!
Why don't you tell us an introduction about your son.
It's nice to have you on the list.
Mom to Mandy 16, Angie 10, and Rocky 7, all AS ube3a
Visit my blog for my personal views on life and marriage
Communication Techniques in Angelman Syndrome now available. Click below to order my book.
- Welcome to the group Andrea!
--- In firstname.lastname@example.org, "andreabi63"
> hi everyone,
> I'm Andrea and I have a son 20 months old who has angelman syndrome
> I'm Italian and my english is not very good.
> by Andrea