80Re: Lamictol for Seizures in Angelman
- Apr 8 9:34 PM--- In familiesofangelmansyndrome@y..., ronandalyson <no_reply@y...>
> I have a seven year old daughter with Angelman Syndrome. SheRon,
> recently had her first seizure. The Neurologist has recommended
> putting her on medication. Lamictol is one of medications the Dr.
> has recommended. We are concerned about the potential serious side
> effects with this drug. Does anyone have experience with its use?
> Ron McKenzie
I have not had experience with this seizure medication, but find that
the internet is a wonderful resource. Have you posted on the
listserv? There are a lot of people on there with lots of experience
with the different drugs. If you want info on signing up with the
listserv, please let us know and we will do what we can to get you on
My Matt was resently put on Topomax and he is not the same child. He
is very moody....crabby often, drools a lot more and his sleeping
habits are worse then ever. Whether it is him growing up, or actually
the meds I am not sure, but he is not the same as he used to be.
Please keep us updated on what you find out and good luck!
We are all here for you!
Wendy & Terry Johnson
Matthew, 9, del+
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