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2872Re: [Families of Angelman Syndrome] New to Angelman Syndrome

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  • Peggy Ann
    Jun 17, 2010
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      --- In familiesofangelmansyndrome@yahoogroups.com, r sonstegard <rsonstegard@...> wrote:
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      > I am a real person too but this group has pretty much died completely. There is alot of good advice at the angelman listserve.
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      > Becky
      > Ali--8
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      > <a href="http://www.snapdollars.com/index/lilacsandlac"><img src="http://www.snapdollars.com/images/banners/05.gif"; border="0"></a>
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      > ----- Original Message ----
      > From: Stephanie Sullivan <sully_angel_boys@...>
      > To: familiesofangelmansyndrome@yahoogroups.com
      > Sent: Thu, June 3, 2010 8:57:39 PM
      > Subject: Re: [Families of Angelman Syndrome] New to Angelman Syndrome
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      > Hi Kristina.  My son is 4 and has AS.  We found out when he was almost 2.  It is a big shock at first, but you learn to just roll with it.  I haven't found too many people on this group, just alot of spam.  However I am a real person so if you ever need to talk I am here.  Have a nice day.
      > Stephanie
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      > --- On Tue, 6/1/10, miss_elayna <miss_elayna@...> wrote:
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      > From: miss_elayna <miss_elayna@...>
      > Subject: [Families of Angelman Syndrome] New to Angelman Syndrome
      > To: familiesofangelmansyndrome@yahoogroups.com
      > Date: Tuesday, June 1, 2010, 8:35 PM
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      > Hello everybody My name is Kristina Beserra. My 4 1/2 year old daughter Elayna was just diagnosed with Angleman Syndrome. I am in a little shock for the last 3 1/2 years the doctors had convinced me that she had Rett Syndrome so I am completely new to all of this. We live in Torrance Ca and she sees specialist @ Miller Childrens Hospital in Long Beach. ANy help or advice on what to do now would be gratly appreciated.
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