255Re: [Families of Angelman Syndrome] i have no idea how this works
- Feb 15, 2005Hello!!! My name is Anna I have a fixing to be 3 year old son named Jaycob that has Angelman he is the light of my life. We foung out when Jaycob was 8 months old that he had this rare syndrome he use to have startling spells but now he has none he has not yet gotten his AFO's but I will be taking him sometime this week he crawls very well & he walks on the side of evrything. Life with a child that has this syndrome is very rewarding Jaycob's beautiful blue eyes take all my pain away. He means the world to me sometimes I wish that I had something inside of me to make in normal but he is normal enough to me he is everything I ever wanted in a little boy. Well I hope to hear from you soon.
Anna & Jaycob
"J.W. Archer" <ditchlicker_2000@...> wrote:
I'm not too sure how this group thing works but i
would really like to be able to chat with other
parents of angels. My daughter is three and her name
is Lennon. She was diagnosed at about 18 months after
repeated attempts to stop her seizure's with
medication wasn't working. Eventually, Lennon's
mother and I took her to the emergency room at Sick
Kids in Toronto (which is about an hour and a half
away). After a week or so, they found the problem. We
were very happy, figuring that if they had found the
problem, they can now fix it. Needless to say, life
hasn't been the same since. I am now a 27 year old
single father living off the system. It has been a
rough road, but Lennon always has a smile to cheer me
up. She has beautiful red hair and even more
beautiful blue eyes. She eats using her hands and
still uses a bottle. She is on Valproic Acid for her
seizures and Chloral Hydrate to help her get a good
night sleep. She has braces for her legs (AFO's) which
she uses in her stander and walker. She can crawl
very well and pull herself to stand against things.
If you would like to chat with me, my MSN is barrieboy_77@....
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