211new member with question
- Jan 15, 2005Hi everyone. I am a new member. I am a special education teacher and
one of my students has Angelman Syndrome. He is in my classroom part
of the time and in regular kindergarten with support part of the
time. I am always trying to learn more that will help me be a better
teacher to all of my students, and I have found that parents are a
source of a lot of good information.
There is a way that you could help me right now: I am taking a
graduate class on research and I am doing a project on development
of expressive communication skills in Angelman syndrome. For part of
the assignment I am to construct an email survey and send it to at
least 5 people. Would some of you allow me to send you my survey? In
real life I only know one Angel, so I thought I would ask on some of
the webgroups to see if I could find more people. I thought of just
going to the Members list and sending it to everyone who's email is
listed, but I don't know if that is a proper use of the list. (If
you think it's ok, someone please tell me that.)
Anyway, there are really 2 things I am hoping to learn from my
survey. First, what are the levels of expressive communication that
are being achieved by children and adults with Angelman? I have read
somewhere that verbally, 4 words is about all that can be hoped for,
but the parent of my student says that she has met people with
Angelman who have achieved much more than that. I would like to
verify that. I think that having higher expectations could only
help, but don't want to be unrealistic either.
Secondly, I am interested in how much success your children (or
adult children) are meeting with other forms of communication such
as PECS, sign language or gestures, speech-output devices, or some
other method. Although I know each person is different, that might
give us a clue as to what is more likely to be effective.
This is not a dissertation or anything, just one assignment for one
class, but if I do come up with anything interesting I will share it
with the group.
I hope you will consider my request to participate in the survey. If
you are willing please reply or email me. beckybecky6@...
And as a new group member I look forward to participating in
discussions and learning from you as well, to the benefit of my own
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