[evol-psych] NIH not told of deaths in gene studies
- 3rd November, 1999
NIH NOT TOLD OF DEATHS IN GENE STUDIES
from The Washington Post
Scientists and drug companies have failed to notify the National Institutes of
Health about six deaths that occurred in gene therapy experiments in the past
19 months, keeping details of the deaths from becoming public, according to
interviews with researchers and federal officials.
The deaths are the first in gene therapy to come to light that were purposely
withheld from the NIH, one of two federal agencies charged with overseeing the
safety of the controversial field of medical research, which seeks to cure
diseases by giving patients new genes.
The lack of disclosure provides new evidence of a shift toward secrecy in gene
therapy, traditionally one of the more open fields of medical research, and
reflects escalating efforts by gene therapy companies to weaken federal