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921

Re: Scooter or wheelchair? Which is better? Try the "Travelscoot". Google it. Very efficient, lightweight and transportable even in a sedan. A little pricey though and not covered by insurance. I love

Khozema Hussain
Nov 29, 2014
#921
 

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920

Scooter or wheelchair? Which is better? Hey everyone! I realized that a cane isn't enough for me. I want to buy something that can help me in short routes, indoor and outdoor, like zoo, airport,

Raquel Almeida
Nov 29, 2014
#920
 

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919

New diagnostic pathway for US patients, please help us spread the wo We are excited to announce the release of a new diagnostic program. Please help make this new initiative a success by sharing this information with your

elainelee333
Sep 30, 2014
#919
 

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918

Re: rituximab treatment The Jain Foundation has spoken with Dr. Sinnreich about this study and has posted a summary of the article online that includes a link to the full text. Go

elainelee333
Sep 22, 2014
#918
 

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917

Re: rituximab treatment Got an email about clinical trial on Bortezomib. I think it might be useful for the community. There is an ongoing clincal trial on Bortezomib (Velcade TM) in

kuku_nisan
Sep 10, 2014
#917
 

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916

rituximab treatment Hi there, In the below link, you can find an article describes the rituximab experimental treatment. Does anyone else tried this treatment? Or intend to try

kuku_nisan
Sep 9, 2014
#916
 

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915

Stem Cell treatment Stem Cell treatment seems to be more popular in recent years. If you search the web, you can discover plenty of clinics. One of them claims to treat Muscular

kuku_nisan
Jun 2, 2014
#915
 

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914

Re: New Facebook group! Hi Amy, Already joined.   Regards, Bipin Panickar India On Thursday, 10 April 2014 7:10 AM, "amy.s.ortiz@..." wrote:   Hi I

Bipin Panickar
Apr 9, 2014
#914
 

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913

New Facebook group! Hi I don't know if it is ok to post this here but I created an open facebook page for patients with Dysferlinopathy as well as their families and friends, to

ameliabedillia
Apr 9, 2014
#913
 

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912

Clinical Outcome Study Recruitment Exceeds Goal We are delighted to announce that 193 patients have been recruited into the Clinical Outcome Study for Dysferlinopathy (COS), exceeding the original goal of

elainelee333
Apr 2, 2014
#912
 

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911

Re: New Clinical study at NIH Try the following way to open link Trial # is NCT01851447 simply search this code in google and the first hit would open the trial page best, Manjinder Singh

Manjinder Singh
Mar 4, 2014
#911
 

Messages List

910

Re: New Clinical study at NIH Thank you, but this is not a good link, it is asking me to log in to my e-mail account.

thamarasd
Mar 4, 2014
#910
 

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909

Re: Cellcept therapy Thank you so much Myra.

thamarasd
Mar 4, 2014
#909
 

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908

Re: Cellcept therapy I wish I could help, but I am not on these meds.   Good luck to you!!! Myra M. ________________________________ From: Thamara D To:

Myra Marsh
Mar 3, 2014
#908
 

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907

New Clinical study at NIH Scientists at the NIH are looking for patients who are able to walk and have a limb girdle muscular dystrophy, Miyoshi Myopathy, or Becker muscular dystrophy

baw1064
Mar 3, 2014
#907
 
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