Welcome to DMD Pioneers Mailing List!
DMD Pioneers is an international group for anyone with Duchenne Muscular Dystrophy
(DMD) who has beaten the odds. We are in effect Pioneers, in that we have found
ways to keep going and to deal with what we've got. Here we can share experiences,
give advice or just talk about life in general. We should celebrate the fact
that we are not statistics and are DMD Pioneers!
Due to the nature of discussion that goes on in the DMD Pioneers group, membership
is limited to those who actually have DMD or parents of children
with DMD who are at least 16 years of age. This is not meant
to be a support group for parents of newly diagnosed children or as a means to
find out about treatment options. This allows for open and candid discussion
among members who have "been there, done that" when it comes to the
childhood stages of this disease.
***Please be aware that certain topics may be of a somewhat personal and/or mature nature!***
The new DMD Pioneers website at dmdpioneers.org has
launched as a blog. The blog is written by fellow Pioneers sharing our unique perspectives
on living with DMD. The chat room is open 24/7 and is available to all those
interested in participating.
DMD Pioneers now has profile pages. Create your own and view others: click
- Muscular Dystrophy
- Jan 3, 2002
- This is a restricted group.
- Attachments are not permitted.
- Members cannot hide email address.
- Listed in Yahoo Groups directory.
- Membership requires approval.
- Messages are not moderated.
- All members can post messages.