Re: Help with Personal Care Attendant (PCA) Respite Care in B.C.
- What is needed is an Independent Living Centre run by disabled users
and funded by national and local government.
However, you might need to campaign for it.
--- In email@example.com, lm murray <lmm789@...> wrote:
> Hi everyone,
> Does anyone have experience accessing public Personal Care Attendant
(PCA) respite care? Here's the problem:
> I'm very concerned about a friend. She works during the day despite
CFS/ME then goes home to provide PCA services in the evening as
required by husband, who has Muscular Dystrophy. He is a lovely, funny
guy, mostly still independent and very proud of this but increasingly
as the disease progresses he needs help in the form of being lifted
from wheelchair to couch, wheelchair to bed, etc. He's no lightweight,
so wife injures herself fairly regularly, which in turn
upsets/humiliates him, adding terrific pressure on what is o/w a
terrific relationship. What, if any, public respite care might be
available to take the heat off and how would s/he initiate it? Not
surprisingly, they're on a VERY ltd budget so private contracting is
beyond reach. Home care in B.C. seems to be SEVERELY restricted to
those recovering from a short-term trauma. There seems to be an
UNFAIR! expectation that family members provide these specialized
services no matter what the
> cost to their own autonomy/health, which rebounds onto the person
with the disability, who pays three times.
> Anyone with any experience here? All info/advice greatly appreciated!