Fwd: File - On subscription
- People who have PPS often have to deal with 'apnoea'.
I'm forwarding the extract below: -
Within the last decade publicity has been given to a condition which
has been named 'obstructive sleep apnoea' ('apnoea' means 'without
breath') or OSA. Normafly a sleeper, when suffering a blockage of
the airway, first tries to breathe in spite of the blockage, with
spasmodic heavings of the rib-cage and diaphragm. This in itself can
have deleterious effects, especially for sufferers from heart
disease, by causing abnormal changes to air pressure in the lungs,
increased blood pressure in the chest and decreased level of oxygen
in the blood. However, it usually only lasts for about fifteen
seconds before these symptoms cause a partial return to wakefulness,
whereupon normal breathing is restored, and sleep is resumed. The
cycle usually repeats itself many times, in severe cases several
hundred times in a night.
In North America there are now numerous clinics spedalising in sleep
disorders, and doctors have found a correlation between OSA and
hypertension (high blood pressure). OSA is not a primary cause of
hypertension but it may be a contributory or aggravating factor.
According to one theory the correlation only means that both
conditions result from some other cause such as, for example, being
overweight. But a leading researcher, Christian Guilleminault,
reports that only half of those who suffer from OSA are overweight,
and hypertension still occurs in the lean OSA patients.
The condition can cause psychological as well as physical ill-
effects. Episodes of apnoea are normally commoner and more severe
during the REM (rapid eye movement) phases of sleep when dreaming
takes place; these are the periods of deepest unconsciousness.
According to current thinking, they are also the phases we can least
afford to be deprived of.
When a patient's REM sleep is disturbed by frequent episodes of OSA -
even though he does not remember them in the morning - it may result
in persistent sleepiness and fatigue during waking hours. Also there
are often complaints of deterioration of memory and judgement, early
morning confusion and headaches, and attacks of irrational anxiety
and depression. The symptoms resemble in a milder form the effects
induced in prisoners who are deliberately deprived of sleep while
being interrogated. The recommended treatment varies from
prescribing weight loss and the avoidance of alcohol late in the day
to special appliances pumping air through the nose, or surgery to
remove part of the soft palate and fi the muscles in the throat.
From "The scars of Evolution" by Elaine Morgan 1990
This is NOT a medical text book.
- -To Penny,
Hi, my name is Sandy and I have PPS. From the information that I
have been able to find (which isn't much) is that for you to either
go to your local doctor and ask for a refferral go a PPS Speciealist
near you or if you are still under a specialist for the polio he/she
should be able to do some tests. Talk to them first about this as
there is no specific test for PPS. It is a matter of testing you for
every other god damn thing under the sun and they all come back
negative(excuse the language), then its probably PPS. Like I said
you will want to talk lto them first before committing yourself to
all those tests.
Also if you are a member of compuserve they have a disability forum,
witch has a PPS support group on there and also information files on
pps which you can download. Also yahoo has a pps support group which
you might like to join.
As for symptoms from what I can understand are very individual. Some
are fatigue in one of more limbs, headaches first thing in the
morning, muscle weakness in affected limbs, etc. As for exercise
there are two points of view:
1. Rest, rest, rest, and more rest to conserve what strength you
2. Exercise as much as you can but once you start to have symptoms
stop and rest for a while. Then get up and do a bit more then rest,
My doctor has got me doing the second view, which I think most
doctors opt for. For as she says what you dont use you'll loose.
Fair enough I suppose. Like you I also have a weight problem and
this could also be why she goes with the theory as the more weight
you carry the more fagtigue and symptoms you'll have.
If you wan't any other info or just someone to talk to you can either
leave a message hear for me as I chech in on a regular basis or
email me direct at sandragoldsworthy@...
Hope this has been a help, hope to speak to you soon
> My name is Penny. I was born in 1951 and caught the polio virus at
> old. I was completely paralyzed neck to toe. I did the whole nineyards,
> Physical therapy, surgeries and had braces until Junior year ofhigh school.
> I had the right foot drop but I didn't care, I had enough ofsurgeries. I
> had two girls, but, after the first my right ankle fused at 20degrees. This
> was quite an adjustment for me cause, I thought that the pain wouldcease.
> So, I thought things were going to be okay, after that. I knew Ihad certain
> limitations and I just accepted it. But last year after my placeof work
> closed down I realized I had severe fatigue due to working 80 hours1 week
> and off the next. Of course I'm still thinking it's okay so I'mdoing a
> career change from a Polysomnograph Technician to EEG technicianthat works
> days instead of 8 PM to 8 AM shift. But I noticed lots thingsgoing on, like
> some symptoms of PPS. I'm just hoping I can get thru school okay.I have no
> insurance and I'm living on my savings as long as I can cause Ireally don't
> think I could work and go to school. So, this is where I am, I'mtrying to
> find out some information on post polio. I'm looking for someanswers, I
> should say networking for some answers and trying to just find outjust what
> to expect in the future. When I was a little girl 2 or 3 yearsold, I was
> the March of Dimes Poster Girl In Detroit, Michigan.to be
> I would like to thank you for accepting me into this group. I hope
> enlightened about PPS symptoms and would like to get to know all ofyou. I'm
> kind of new at this, so please bear with me if I don't catch onright away.
> You begin to think that you're getting pretty good at some thingson the
> computer and then someone comes along shows you different.have a lot
> I can fall asleep when I finally sit down without a problem, I
> more pain just getting thru the day, and I thought I had low sugarbut I'm
> thinking that I have Brain fog some people are saying???? I don'tknow,
> that's why I'm searching for answers. I have gained weight since Ican't
> move like I did before. And I am panicking cause I know it's notgood for my
> leg, cause of how weak it is. I also stopped exercising 7 yearsago due to
> coming home and falling asleep many hours at a time.don't know
> Thanks for listening. I'm just a little nervous cause I really
> what to expect and where to go to get help.
> (Didn't know I could be so long winded, Are you still awake out