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  • ADDIESCHEEKS@aol.com
    Hi, My name is Penny. I was born in 1951 and caught the polio virus at 11months old. I was completely paralyzed neck to toe. I did the whole nine yards,
    Message 1 of 3 , Feb 12, 2001
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    • Keith Armstrong
      People who have PPS often have to deal with apnoea . I m forwarding the extract below: - Within the last decade publicity has been given to a condition which
      Message 2 of 3 , Feb 13, 2001
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        People who have PPS often have to deal with 'apnoea'.

        I'm forwarding the extract below: -

        Within the last decade publicity has been given to a condition which
        has been named 'obstructive sleep apnoea' ('apnoea' means 'without
        breath') or OSA. Normafly a sleeper, when suffering a blockage of
        the airway, first tries to breathe in spite of the blockage, with
        spasmodic heavings of the rib-cage and diaphragm. This in itself can
        have deleterious effects, especially for sufferers from heart
        disease, by causing abnormal changes to air pressure in the lungs,
        increased blood pressure in the chest and decreased level of oxygen
        in the blood. However, it usually only lasts for about fifteen
        seconds before these symptoms cause a partial return to wakefulness,
        whereupon normal breathing is restored, and sleep is resumed. The
        cycle usually repeats itself many times, in severe cases several
        hundred times in a night.

        In North America there are now numerous clinics spedalising in sleep
        disorders, and doctors have found a correlation between OSA and
        hypertension (high blood pressure). OSA is not a primary cause of
        hypertension but it may be a contributory or aggravating factor.
        According to one theory the correlation only means that both
        conditions result from some other cause such as, for example, being
        overweight. But a leading researcher, Christian Guilleminault,
        reports that only half of those who suffer from OSA are overweight,
        and hypertension still occurs in the lean OSA patients.

        The condition can cause psychological as well as physical ill-
        effects. Episodes of apnoea are normally commoner and more severe
        during the REM (rapid eye movement) phases of sleep when dreaming
        takes place; these are the periods of deepest unconsciousness.
        According to current thinking, they are also the phases we can least
        afford to be deprived of.

        When a patient's REM sleep is disturbed by frequent episodes of OSA -
        even though he does not remember them in the morning - it may result
        in persistent sleepiness and fatigue during waking hours. Also there
        are often complaints of deterioration of memory and judgement, early
        morning confusion and headaches, and attacks of irrational anxiety
        and depression. The symptoms resemble in a milder form the effects
        induced in prisoners who are deliberately deprived of sleep while
        being interrogated. The recommended treatment varies from
        prescribing weight loss and the avoidance of alcohol late in the day
        to special appliances pumping air through the nose, or surgery to
        remove part of the soft palate and fi the muscles in the throat.

        From "The scars of Evolution" by Elaine Morgan 1990

        This is NOT a medical text book.
      • Sandy Goldsworthy
        -To Penny, Hi, my name is Sandy and I have PPS. From the information that I have been able to find (which isn t much) is that for you to either go to your
        Message 3 of 3 , Feb 13, 2001
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          -To Penny,

          Hi, my name is Sandy and I have PPS. From the information that I
          have been able to find (which isn't much) is that for you to either
          go to your local doctor and ask for a refferral go a PPS Speciealist
          near you or if you are still under a specialist for the polio he/she
          should be able to do some tests. Talk to them first about this as
          there is no specific test for PPS. It is a matter of testing you for
          every other god damn thing under the sun and they all come back
          negative(excuse the language), then its probably PPS. Like I said
          you will want to talk lto them first before committing yourself to
          all those tests.

          Also if you are a member of compuserve they have a disability forum,
          witch has a PPS support group on there and also information files on
          pps which you can download. Also yahoo has a pps support group which
          you might like to join.

          As for symptoms from what I can understand are very individual. Some
          are fatigue in one of more limbs, headaches first thing in the
          morning, muscle weakness in affected limbs, etc. As for exercise
          there are two points of view:

          1. Rest, rest, rest, and more rest to conserve what strength you
          have or

          2. Exercise as much as you can but once you start to have symptoms
          stop and rest for a while. Then get up and do a bit more then rest,
          etc etc.

          My doctor has got me doing the second view, which I think most
          doctors opt for. For as she says what you dont use you'll loose.
          Fair enough I suppose. Like you I also have a weight problem and
          this could also be why she goes with the theory as the more weight
          you carry the more fagtigue and symptoms you'll have.

          If you wan't any other info or just someone to talk to you can either
          leave a message hear for me as I chech in on a regular basis or
          email me direct at sandragoldsworthy@...

          Hope this has been a help, hope to speak to you soon

          Sandy


          >
          > Hi,
          > My name is Penny. I was born in 1951 and caught the polio virus at
          11months
          > old. I was completely paralyzed neck to toe. I did the whole nine
          yards,
          > Physical therapy, surgeries and had braces until Junior year of
          high school.
          > I had the right foot drop but I didn't care, I had enough of
          surgeries. I
          > had two girls, but, after the first my right ankle fused at 20
          degrees. This
          > was quite an adjustment for me cause, I thought that the pain would
          cease.
          > So, I thought things were going to be okay, after that. I knew I
          had certain
          > limitations and I just accepted it. But last year after my place
          of work
          > closed down I realized I had severe fatigue due to working 80 hours
          1 week
          > and off the next. Of course I'm still thinking it's okay so I'm
          doing a
          > career change from a Polysomnograph Technician to EEG technician
          that works
          > days instead of 8 PM to 8 AM shift. But I noticed lots things
          going on, like
          > some symptoms of PPS. I'm just hoping I can get thru school okay.
          I have no
          > insurance and I'm living on my savings as long as I can cause I
          really don't
          > think I could work and go to school. So, this is where I am, I'm
          trying to
          > find out some information on post polio. I'm looking for some
          answers, I
          > should say networking for some answers and trying to just find out
          just what
          > to expect in the future. When I was a little girl 2 or 3 years
          old, I was
          > the March of Dimes Poster Girl In Detroit, Michigan.
          > I would like to thank you for accepting me into this group. I hope
          to be
          > enlightened about PPS symptoms and would like to get to know all of
          you. I'm
          > kind of new at this, so please bear with me if I don't catch on
          right away.
          > You begin to think that you're getting pretty good at some things
          on the
          > computer and then someone comes along shows you different.
          > I can fall asleep when I finally sit down without a problem, I
          have a lot
          > more pain just getting thru the day, and I thought I had low sugar
          but I'm
          > thinking that I have Brain fog some people are saying???? I don't
          know,
          > that's why I'm searching for answers. I have gained weight since I
          can't
          > move like I did before. And I am panicking cause I know it's not
          good for my
          > leg, cause of how weak it is. I also stopped exercising 7 years
          ago due to
          > coming home and falling asleep many hours at a time.
          > Thanks for listening. I'm just a little nervous cause I really
          don't know
          > what to expect and where to go to get help.
          > Sincerely,
          > Penny
          > (Didn't know I could be so long winded, Are you still awake out
          > there????)~_~>>
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