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  • KellyR6886@xxx.xxx
    Hello- I just subscribed. My 17 1/2 month old son is going to be tested for diabetes insipidus next week. He is healthy and happy but drinks upwards of
    Message 1 of 9 , Oct 16, 1999
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      Hello- I just subscribed. My 17 1/2 month old son is going to be tested for
      diabetes insipidus next week. He is healthy and happy but drinks upwards of
      60-100 oz of fluid a day, he can easily drink 20-30 oz in one sitting if I
      let him. He eats very well also so he is not substituting the fluid for
      solids. I would like to know if there are other parents on this list.
      Please share any information you can. I hadn't even heard of this until his
      well child visit yesterday.

      Kelly
      "if it weren't for caffeine I'd have no personality at all"
    • Sonylla26@aol.com
      Hello everyone, I am new to this group. I just found out that I might have DI. Since I was 19 (I m now 27) I have been going to the bathroom so much, and
      Message 2 of 9 , Jan 25, 2001
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                         Hello everyone,
        I am new to this group.  I just found out that I might have DI.  Since I was
        19 (I'm now 27) I have been going to the bathroom so much, and always
        thirsty.  I've been to so many doctors, some say "Well, that's the way you
        are, or You drink too much water."  I've never heard of DI, until I was
        searching on the net for something related to urine problems.  I was so angry
        when I found out that there was something none of the so called "Doctors"
        tested me for.  Now I think I have a good doctor, but one thing I have
        learned is, you have to find out what's wrong with you first, then tell the
        doctors what it is , and to fix it. lol Just like taking your car to the
        mechanic.  If not, they'll fix the wrong thing. lol, So I seem to be always
        tired, and dizzy, my eyes are always sunken in, and I like to run, but I get
        so dizzy sometimes.  So my name is Allyson I live in Massachusetts.  I'm so
        grateful to have found this group, its helped me a lot, just to know that I'm
        not crazy, that there is something medicaly wrong.  Thank you all for sharing
        and I wish you all well.    
                                     Allyson
      • Debbie Graves
        Hi, Allyson - You are so right about finding out what is wrong, then telling the doctor to fix it! It should NOT be that way, but it certainly has been in my
        Message 3 of 9 , Jan 25, 2001
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          Hi, Allyson -
           
          You are so right about finding out what is wrong, then telling the doctor to fix it!  It should NOT be that way, but it certainly has been in my case. 
           
          deb
           
          >From: Sonylla26@...
          >Reply-To: diabetesinsipidus@egroups.com
          >To: diabetesinsipidus@egroups.com
          >Subject: [diabetesinsipidus] hello
          >Date: Thu, 25 Jan 2001 13:28:47 EST
          >
          >
          > Hello everyone,
          >I am new to this group. I just found out that I might have DI. Since I was
          >19 (I'm now 27) I have been going to the bathroom so much, and always
          >thirsty. I've been to so many doctors, some say "Well, that's the way you
          >are, or You drink too much water." I've never heard of DI, until I was
          >searching on the net for something related to urine problems. I was so angry
          >when I found out that there was something none of the so called "Doctors"
          >tested me for. Now I think I have a good doctor, but one thing I have
          >learned is, you have to find out what's wrong with you first, then tell the
          >doctors what it is , and to fix it. lol Just like taking your car to the
          >mechanic. If not, they'll fix the wrong thing. lol, So I seem to be always
          >tired, and dizzy, my eyes are always sunken in, and I like to run, but I get
          >so dizzy sometimes. So my name is Allyson I live in Massachusetts. I'm so
          >grateful to have found this group, its helped me a lot, just to know that I'm
          >not crazy, that there is something medicaly wrong. Thank you all for sharing
          >and I wish you all well.
          > Allyson


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        • DTaylo5397@aol.com
          I know, been there, done that :)
          Message 4 of 9 , Jan 25, 2001
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            I know, been there, done that :)
          • mskewlgal@aol.com
            Allyson and others, A brief list of the highlights of what I have had to diagnosis myself: •Brain Tumor •Cancer •Slipped Disks (3 times) •DI
            Message 5 of 9 , Jan 25, 2001
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              Allyson and others,

              A brief list of the highlights of what I have had to diagnosis myself:

              •Brain Tumor
              •Cancer
              •Slipped Disks (3 times)
              •DI
              •Something called Xanthoma Disseminatum

              There is more, but my point is this. The number one person to look out for
              your health is yourself. Trust your body. If you think there is something
              wrong, there probably is!
              Way to stay on top of it, Allyson!

              Best wishes for a great day all,
              Stephanie
            • stilldeb
              Wow, you diagnosed your own brain tumor? Incredible! I have had to go pull my own charts and brain scans (I was working in the hospital), and self refer
              Message 6 of 9 , Jan 25, 2001
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                Wow, you diagnosed your own brain tumor?  Incredible!
                 
                I have had to go pull my own charts and brain scans (I was working in the hospital), and self refer myself to a specialist at Vanderbilt University Hospital, where I eventually had brain surgery (inner ear) and was part of a research project down there for several years.
                 
                I learn so much by doing research on the internet, and by comparing my own test results to websites that list "normal lab values", etc. 
                 
                And these egroups are such a wealth of information, too!
                 
                deb
                 
                 
                ----- Original Message -----
                Sent: Thursday, January 25, 2001 7:21 PM
                Subject: Re: [diabetesinsipidus] hello

                Allyson and others,

                A brief list of the highlights of what I have had to diagnosis myself:

                •Brain Tumor
                •Cancer
                •Slipped Disks (3 times)
                •DI
                •Something called Xanthoma Disseminatum

                There is more, but my point is this. The number one person to look out for
                your health is yourself. Trust your body. If you think there is something
                wrong, there probably is!
                Way to stay on top of it, Allyson!

                Best wishes for a great day all,
                Stephanie


                Community email addresses:
                  Post message: diabetesinsipidus@onelist.com
                  Subscribe:    diabetesinsipidus-subscribe@onelist.com
                  Unsubscribe:  diabetesinsipidus-unsubscribe@onelist.com
                  List owner:   diabetesinsipidus-owner@onelist.com

                Shortcut URL to this page:
                  http://www.onelist.com/community/diabetesinsipidus

              • Merry Macpherson
                In my case, DI is genetic. So my family has always known I have it, and I have several family members with it. And the doctors STILL think I m nuts for
                Message 7 of 9 , Jan 26, 2001
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                  In my case, DI is genetic. So my family has always known I have it, and I
                  have several family members with it. And the doctors STILL think I'm nuts
                  for "thinking" I have DI, still want me to go through testing, blah blah
                  blah. Maybe if I ever stuck with a doctor for a long time I wouldn't have
                  to... about to get on the 8th insurance plan in 3 years. I only even think
                  about seeing an endo for the meds. I asked at my OB/GYN office if they'd
                  write me a prescription and they wanted me to see an endo because they
                  thought it would cause blood clots. I never went, did that with my last
                  pregnancy and it seemed like all I ever did was go to doctors offices and
                  get blood drawn. I looked it up and the only info I could find on blood
                  clots is when it's used in the injectible form and given during surgery. I
                  assume they are doing this to "normal" people.

                  I just avoid the hassle and get the spray from my mother, her and my sister
                  are taking the pill form and she has a prescription for the spray for my
                  sister and she doesn't use it. One bottle lasts me months because I only
                  take it when I'm going to be in the car for a long time.

                  Something weird, I'm about 8 months pregnant and I don't seem to be getting
                  up that often! I slept part of today and when I woke up my glass of water
                  was full and it was dark and I think it had been more than 2-3 hours since I
                  had last went to the bathroom. Wondering what's going on because 2-3 hours
                  is normal for me without being pregnant.

                  Can someone post an email address to get hold of Dr Robertson's office? They
                  sent me stuff to test my son for DI when he was born, I was wanting to see
                  if they could do that for the new baby too.

                  -Merry



                  Hello everyone,
                  I am new to this group. I just found out that I might have DI. Since I was
                  19 (I'm now 27) I have been going to the bathroom so much, and always
                  thirsty. I've been to so many doctors, some say "Well, that's the way you
                  are, or You drink too much water." I've never heard of DI, until I was
                  searching on the net for something related to urine problems. I was so
                  angry
                  when I found out that there was something none of the so called "Doctors"
                  tested me for. Now I think I have a good doctor, but one thing I have
                  learned is, you have to find out what's wrong with you first, then tell the
                  doctors what it is , and to fix it. lol Just like taking your car to the
                  mechanic. If not, they'll fix the wrong thing. lol, So I seem to be always
                  tired, and dizzy, my eyes are always sunken in, and I like to run, but I get
                  so dizzy sometimes. So my name is Allyson I live in Massachusetts. I'm so
                  grateful to have found this group, its helped me a lot, just to know that
                  I'm
                  not crazy, that there is something medicaly wrong. Thank you all for
                  sharing
                  and I wish you all well.
                  Allyson

                  _________________________________________________________________
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                • sherry-heath585@vendettaformypappa.info
                  Man XL is a dream come true product for Men to enlarge their manhood come and check out the before and after pics! http://dontbelategetithere.com/wrck
                  Message 8 of 9 , Mar 5, 2007
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                    Man XL is a dream come true product for Men to enlarge their manhood
                    come and check out the before and after pics! http://dontbelategetithere.com/wrck
                  • sherry-heath380@idntundastand.info
                    All the girls out there are totally lying when they tell you that size does not matter. Want proof? I am telling you this because it is the honest truth, look
                    Message 9 of 9 , Apr 4, 2007
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                      All the girls out there are totally lying when they tell you that size does not matter. Want proof?
                      I am telling you this because it is the honest truth, look I should know, they say that it is all in the way you use it, not how big it is, well I got news for you all, that is pure lies.
                      I know from personal experience, I will tell you about a secret that Joey has made me promise to never ever tell anyone, but since he has not called me in three weeks after standing me up, I am going to break the promise and tell you how he went from having a tiny wang and in 4 months he is now about nine inz and get this, it is still getting bigger. He has been secretly taking grow stuff from this site http://www.hurryheredontmissout.com/clxc
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