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Group Description

Last Updated February 1, 2017

Welcome!

And yes Home it is here! I had Decompression Surgery on April 3, 2003 for Arnold Chiari Malformation, 20mm herniated, no syrinx,I had a laminectomy
of the c1, c2, and c3,I have a bovine graft. (Lining Of A Cow's Heart)

Before surgery I suffered with Blepharospasms. I still get botox injections. Symptoms that went away after surgery are: Sleep Apnea,Tinnitus, Syncope (Different Than Passing Out), Paraathesia, Apnea, Aspirate, Ataxia, Atrophy, Basilar Invagination, Clonus, Dysesthesia (sensation of pins & needles varies in different parts of body in different people), Dysequilibrium (stumbling to one side), Dysphagia (difficulty in swallowing), Ectopia and More...

Update: Most of the above symptoms are back since 2009

I made this group as I want to help you understand Chiari and to let you know you are not alone.

There are caregivers in the group, such as parents, sisters, brothers. best-friends,nieces/nephews spouses, cousins and more. Also, this group is for people who have Spina Bifida, Migraines, Lupus, MS, Chiari 0, Hydrocephalus, PTC, & Bulging/Herniated Disc.

Note: Please Allow Anywhere From 6 -hours 12 hours - 72 hours for your membership to be approved and for your messages to be posted due to different time zones or I might be having a "Chiari" day! Thank you for your understanding.

Please look for me on Facebook! https://www.facebook.com/chiarimalformation

Debra

Group Information

  • 293
  • Advice
  • Sep 24, 2003
  • English

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